CN112053749A - BPD follow-up information system based on multi-source data acquisition and integration - Google Patents

BPD follow-up information system based on multi-source data acquisition and integration Download PDF

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CN112053749A
CN112053749A CN202010897385.1A CN202010897385A CN112053749A CN 112053749 A CN112053749 A CN 112053749A CN 202010897385 A CN202010897385 A CN 202010897385A CN 112053749 A CN112053749 A CN 112053749A
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bpd
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patient
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张晓波
周文浩
汤梁峰
曹云
陈超
徐虹
黄国英
祁媛媛
叶成杰
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Childrens Hospital of Fudan University
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    • GPHYSICS
    • G16INFORMATION AND COMMUNICATION TECHNOLOGY [ICT] SPECIALLY ADAPTED FOR SPECIFIC APPLICATION FIELDS
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    • G16H10/00ICT specially adapted for the handling or processing of patient-related medical or healthcare data
    • G16H10/20ICT specially adapted for the handling or processing of patient-related medical or healthcare data for electronic clinical trials or questionnaires
    • GPHYSICS
    • G06COMPUTING; CALCULATING OR COUNTING
    • G06FELECTRIC DIGITAL DATA PROCESSING
    • G06F9/00Arrangements for program control, e.g. control units
    • G06F9/06Arrangements for program control, e.g. control units using stored programs, i.e. using an internal store of processing equipment to receive or retain programs
    • G06F9/44Arrangements for executing specific programs
    • G06F9/451Execution arrangements for user interfaces
    • GPHYSICS
    • G16INFORMATION AND COMMUNICATION TECHNOLOGY [ICT] SPECIALLY ADAPTED FOR SPECIFIC APPLICATION FIELDS
    • G16HHEALTHCARE INFORMATICS, i.e. INFORMATION AND COMMUNICATION TECHNOLOGY [ICT] SPECIALLY ADAPTED FOR THE HANDLING OR PROCESSING OF MEDICAL OR HEALTHCARE DATA
    • G16H10/00ICT specially adapted for the handling or processing of patient-related medical or healthcare data
    • G16H10/60ICT specially adapted for the handling or processing of patient-related medical or healthcare data for patient-specific data, e.g. for electronic patient records
    • GPHYSICS
    • G16INFORMATION AND COMMUNICATION TECHNOLOGY [ICT] SPECIALLY ADAPTED FOR SPECIFIC APPLICATION FIELDS
    • G16HHEALTHCARE INFORMATICS, i.e. INFORMATION AND COMMUNICATION TECHNOLOGY [ICT] SPECIALLY ADAPTED FOR THE HANDLING OR PROCESSING OF MEDICAL OR HEALTHCARE DATA
    • G16H15/00ICT specially adapted for medical reports, e.g. generation or transmission thereof
    • GPHYSICS
    • G16INFORMATION AND COMMUNICATION TECHNOLOGY [ICT] SPECIALLY ADAPTED FOR SPECIFIC APPLICATION FIELDS
    • G16HHEALTHCARE INFORMATICS, i.e. INFORMATION AND COMMUNICATION TECHNOLOGY [ICT] SPECIALLY ADAPTED FOR THE HANDLING OR PROCESSING OF MEDICAL OR HEALTHCARE DATA
    • G16H50/00ICT specially adapted for medical diagnosis, medical simulation or medical data mining; ICT specially adapted for detecting, monitoring or modelling epidemics or pandemics
    • G16H50/70ICT specially adapted for medical diagnosis, medical simulation or medical data mining; ICT specially adapted for detecting, monitoring or modelling epidemics or pandemics for mining of medical data, e.g. analysing previous cases of other patients
    • HELECTRICITY
    • H04ELECTRIC COMMUNICATION TECHNIQUE
    • H04LTRANSMISSION OF DIGITAL INFORMATION, e.g. TELEGRAPHIC COMMUNICATION
    • H04L51/00User-to-user messaging in packet-switching networks, transmitted according to store-and-forward or real-time protocols, e.g. e-mail
    • H04L51/04Real-time or near real-time messaging, e.g. instant messaging [IM]

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Abstract

The invention relates to and discloses a BPD follow-up information system based on multi-source data acquisition and integration, wherein the BPD follow-up information system operates based on a computer network in a hospital, the BPD follow-up information system is arranged in an internal network of the hospital in a B/S (browser/server) architecture, and an application server and a database are positioned in the internal network of the hospital. The BPD follow-up visit information system based on multi-source data acquisition and integration fully utilizes the data source integration function to integrate data in a hospital information system, data self-declared by a child family and data to be input for medical care, so as to form a data set concerned by the completed BPD follow-up visit. The system is beneficial to comprehensively mastering clinical multi-modal data related to BPD disease occurrence and development in follow-up visits for medical care, and is displayed and applied in a centralized program, so that the nursing of the sick children in the whole period is promoted, and compared with the traditional outpatient service or telephone follow-up visits, the system greatly saves human resources and effectively improves the reliability.

Description

BPD follow-up information system based on multi-source data acquisition and integration
Technical Field
The invention relates to the technical field of BPD data acquisition, in particular to a BPD follow-up information system based on multi-source data acquisition and integration.
Background
Bronchopulmonary dysplasia (BPD) is a chronic disorder of the pediatric respiratory system and is the most common respiratory complication of premature infants. In the course of treatment of premature infants, there are many factors related to BPD, including gestational age, intrauterine growth retardation, deficiency of lung surfactant, maternal conditions during pregnancy, prenatal and postnatal infections, history and malnutrition of amniotic fluid or meconium inhalation, growth and mental motor development retardation, clinical manifestations of pulmonary hypertension, oxygen therapy during hospitalization of premature infants, long-term positive airway pressure, use of antibiotics and hormones, etc.
BPD patients are often hospitalized in the early term, and after undergoing initial treatments such as hospitalization, mechanical ventilation, anti-infection treatment, etc., after discharge, require home oxygen therapy and face complicated home care such as nasal feeding due to swallowing problems. Adequate evaluation is required for the residential environment of the family, smoking of family members, air conditions of the residential area, and vaccination of children patients. After the treatment of the infant in the neonatal period, the infant needs long-term clinic follow-up and guidance.
BPD has important influence on respiratory and nervous systems of children patients, seriously influences the life quality of the children patients and causes heavy economic burden to families and society. Based on the complexity and multifactorial nature of BPD pathogenesis and the requirement of BPD infant to medical care cooperative follow-up visit, the system can integrate the data of the infant in and out of the hospital, realize the good acquisition, integration and presentation of multidimensional data, is favorable for reducing the workload of data query in the follow-up visit and management of patients, and realizes the retrieval and use of the data according to the follow-up visit requirement.
An independent BPD patient is in a clinic, and disease-related data sources comprise patient clinical manifestations and physical examination findings recorded in a hospital information system; record examination reports, physician's diagnoses in hospital information systems; information obtained by medical care during a visit with a patient interview or telephone communication; written records of patient visits at other hospitals, etc. The traditional follow-up visit is based on a blank form established in advance by medical care, the items required to be collected for the BPD patient follow-up visit are specified, the content part is in a space form, information is obtained from face-to-face consultation of the patient or from consultation of a doctor record, and the space in the form is filled in. The system design with partial information portal takes the patient as the main index to establish the running display based on the patient's treatment record, but the design of the information portal is limited to the treatment related data in the hospital, and the characteristic information required by the disease follow-up visit of BPD is scattered under each directory of the system and cannot be integrated, such as:
1. the patient case is stored in the HIS (Hospital Information System) System of the Hospital; 2. image examination reports such as chest radiography reports are stored in a PACS (Picture Archiving and Communication Systems, medical image management System) system; 3. laboratory examination reports such as urinalysis and blood test reports are stored in the LIS (Laboratory Information System) System. The patient data are stored in different server systems respectively and are highly dispersed. Therefore, a special clinic system for patients with bronchopulmonary dysplasia (BPD) needs to be established, and a follow-up system for patients is added, and the family members of the patients can fill in the system by themselves. When a child is discharged from a hospital, parents scan a public number or a small program two-dimensional code provided by the hospital, a doctor in the hospital can set follow-up visit reminding and follow-up visit forms which can push a micro-letter public number or a small program end at intervals of half a month, two months and the like according to needs, and the family members of the patient fill in the follow-up visit forms through the micro-letter public number, the small program or browsers of a PC (personal computer) and a mobile phone.
Disclosure of Invention
The invention provides a BPD follow-up information system based on multi-source data acquisition and integration, aiming at the traditional design written form to acquire BPD infant related follow-up data, and the invention improves the traditional design written form.
The invention provides the following technical scheme: a BPD follow-up visit information system based on multi-source data acquisition and integration is operated based on a computer network in a hospital, the BPD follow-up visit information system is arranged in an internal network of the hospital in a B/S framework, an application server and a database are positioned in an internal network of the hospital, a computer terminal in the hospital directly accesses the application server through a desktop browser to apply the system to carry out work, the application server implements mobile application notification service through a firewall and a front-end processor, and carries out communication and data exchange with a mobile terminal of a patient by means of a small program or a public number embedded with WeChat;
the BPD follow-up visit information system comprises a login interface and an authority interface, wherein the interface after login is a patient list, and is divided into three modules according to the follow-up visit stage requirements of the BPD, and the three modules are respectively: a patient admission condition module, a hospital treatment condition module and a post-discharge follow-up condition module;
the patient admission status module includes the following information content: basic information, birth history, maternal pregnancy history, family environment, family history and physical examination at the time of admission;
the hospitalization status module includes the following information: in hospital oxygen therapy situations, pulmonary surfactant use, mechanical ventilation situations, antibiotic use, test examinations;
the post-discharge follow-up condition module comprises the following information contents: smoking condition of family living environment and co-resident, vaccination condition, daily medication condition, respiratory evaluation, respiratory infection condition, home oxygen therapy condition, nasal feeding condition, nutrition evaluation, check condition in follow-up visit, and development condition;
each module is composed of a plurality of categories, and a plurality of related data variable names are set for medical care according to follow-up visit requirements under each category.
Preferably, the plurality of categories are standardized and are classified according to variable characteristics; the numerical variables are specific numerical values such as age, weight, height and the like; boolean variables are expressed as yes/no or presence/absence, such as oxygen uptake, use of nitric oxide, and the like; the enumeration type variable enumerates all possible values of the variable according to the variable characteristics, and shows that the enumeration type variable is a multi-choice of preset values, such as premature birth reasons, premature rupture of membranes, intrauterine infection, fetal distress and the like.
Preferably, the system carries out planning tasks at regular time every day, and new patients meeting BPD diagnosis are grouped by searching a patient diagnosis list in a hospital database, and the grouped patients enter a follow-up patient list.
Preferably, the automatic acquisition of data under the planning task is performed on the paired group data, the system acquires data corresponding to variables of the two modules, namely the admission time condition and the hospitalization treatment condition, from a hospital database according to the identification information of the paired group patients, the system performs target extraction, standardization, verification and storage on the data which is structurally stored in the hospital information system according to the data source, performs natural language analysis on the content which is stored in the hospital information system in an unstructured manner such as a natural language text, and extracts a corresponding value according to variable setting.
Preferably, the system sends a questionnaire to the user, collects patient data in a way filled by the user, the questionnaire is set in the system by medical personnel responsible for follow-up visits, selects data to be filled by the patient from the follow-up visit module, automatically pushes the data to the patient at the set follow-up visit time, and can also manually select a sending form to a specific user; after receiving the form, the patient can fill the form through the WeChat public number, the data filled and submitted by the patient directly enters the system and is displayed for follow-up medical care, and the medical care can confirm or correct according to the actual situation.
Preferably, after the single patient enters the login interface, the electronic medical record report eCRF is set according to the arrangement of a clinical research team.
The BPD follow-up information system based on multi-source data acquisition and integration has the following beneficial effects:
1. according to the BPD follow-up visit requirement, relevant clinical data are integrated from a hospital information system by a follow-up visit table designed by medical care.
2. The data required by follow-up visit is integrated in multiple ways from the hospital information system, the self-report of the family members of the patients and the medical care entry, and the secondary entry of data collection is avoided.
3. The interface for data display and application is provided, and the embedded application systems are supported.
The data source integration function is fully utilized, data in a hospital information system, data which are self-declared by a child family and data which need to be input in medical care are integrated to form a data set concerned by completed BPD follow-up visits, so that the medical care can comprehensively master clinical multi-modal data related to BPD disease occurrence and development in the follow-up visits and display and use the data in a centralized program, the nursing of the child in the whole period is promoted, and compared with a traditional outpatient service or telephone follow-up visit mode, human resources are greatly saved, and the reliability is effectively improved.
Drawings
FIG. 1 is a diagram of a data integration system according to the present invention;
FIG. 2 is a system architecture diagram of the present invention;
FIG. 3 is a diagram illustrating the interaction pattern between a doctor and a patient according to the present invention.
Detailed Description
The technical solutions in the embodiments of the present invention will be clearly and completely described below with reference to the drawings in the embodiments of the present invention, and it is obvious that the described embodiments are only a part of the embodiments of the present invention, and not all of the embodiments. All other embodiments, which can be derived by a person skilled in the art from the embodiments given herein without making any creative effort, shall fall within the protection scope of the present invention.
Referring to fig. 1-3, a BPD follow-up information system based on multi-source data acquisition and integration, the BPD follow-up information system operates based on a computer network in a hospital, the BPD follow-up information system is arranged in a hospital internal network in a B/S architecture, an application server and a database are located in the hospital internal network, a hospital computer terminal directly accesses the application server through a desktop browser to apply the system for work, the application server implements a mobile application notification service through a firewall and a front-end processor, and performs communication and data exchange with a patient mobile terminal by means of a small program embedded with a WeChat or a public number;
the BPD follow-up visit information system comprises a login interface and an authority interface, the interface after login is a patient list, a single patient enters the system after logging in the interface, the electronic medical record report form eCRF is set according to the arrangement of a clinical research team, and the BPD follow-up visit information system is divided into three modules according to the follow-up visit stage requirements of the BPD, wherein the three modules are respectively: a patient admission condition module, a hospital treatment condition module and a post-discharge follow-up condition module;
the patient admission status module includes the following: basic information, birth history, maternal pregnancy history, family environment, family history and physical examination at the time of admission;
the hospitalization therapy module includes the following: in hospital oxygen therapy situations, pulmonary surfactant use, mechanical ventilation situations, antibiotic use, test examinations;
the post-discharge follow-up condition module comprises the following contents: smoking condition of family living environment and co-resident, vaccination condition, daily medication condition, respiratory evaluation, respiratory infection condition, home oxygen therapy condition, nasal feeding condition, nutrition evaluation, check condition in follow-up visit, and development condition;
each module is composed of a plurality of categories, and a plurality of related data variable names are set for medical care according to follow-up visit requirements under each category.
The multiple categories are subjected to standardized definition and are classified and set according to variable characteristics; the numerical variables are specific numerical values such as age, weight, height and the like; boolean variables are expressed as yes/no or presence/absence, such as oxygen uptake, use of nitric oxide, and the like; enumerating all possible values of the enumerated variable according to the variable characteristics, and displaying the enumerated variable as multiple choices of a preset value, such as premature birth reasons, premature rupture of membranes, intrauterine infection, fetal distress and the like;
grouping of BPD patients: the system carries out planning tasks at regular time every day, new patients meeting BPD diagnosis are grouped by retrieving a patient diagnosis list in a hospital database, and the grouped patients enter a follow-up patient list;
production of diagnosis and follow-up related content: the system acquires data corresponding to variables of two modules, namely the condition of admission and the treatment condition of the hospital from a hospital database according to the identity identification information of patients in the group, extracts, normalizes, checks and stores the target of the data which is structurally stored in the hospital information system according to the data source, analyzes natural language of the content which is stored in the hospital information system in an unstructured mode such as natural language text and the like, and extracts the corresponding value according to the variable setting;
obtaining self-filling data of a patient: the system sends a questionnaire to a user, collects patient data in a mode filled by the user, the questionnaire is set in the system by medical staff responsible for follow-up visits, the data required to be filled by the patient is selected from a follow-up visit module, the data is automatically pushed to the patient at the set follow-up visit time, and a form can be manually selected and sent to a specific user; after receiving the form, the patient can fill the form through the WeChat public number, the data filled and submitted by the patient directly enters the system and is displayed for follow-up medical care, and the medical care can confirm or correct according to the actual situation.
Implementation of system data management:
1. medical staff in charge of follow-up visit of BPD (BPD) children are used for logging in the system, positioning a patient needing follow-up visit according to retrieval, and clicking the patient information row to enter the patient data interface;
2. the data interface is divided into a left navigation bar and a right content bar, the navigation bar is of a tree structure and is divided into a plurality of levels of catalogs according to a system module, the first level of catalogs are follow-up stages and comprise admission conditions, hospital treatment conditions and post-discharge follow-up conditions, the first level of catalogs are second level catalogs, the admission conditions comprise basic information, birth history, maternal pregnancy history, family environment, family history, physical examination during admission and the like, the names of the modules in the second level of catalogs are clicked, specific contents contained by the modules are displayed on the content bar, and the contents of the tree structure and the hierarchical catalogs are determined by subject experts in newborn pediatrics, respiratory department and pediatric care profession in advance according to follow-up requirements of BPD;
3. according to the data source set by the system, the data obtained from the hospital information system and the data obtained from the patient family self-filling have been automatically filled, the system supports the data automatically obtained by the manual checking system, the in-doubt data is checked by looking up the original data, and the manual correction is supported, the data rewritten by manual input is provided with an identifier, and the data which cannot be automatically obtained or does not exist can be supplemented by manual input in a filling mode;
4. the system supports the implementation of retrieval on all variable names and the combined retrieval under various Boolean logics, can display and further export the retrieval result on a new page, and also supports the storage of retrieval modes and the review of historical retrieval.
Embodiments of the system for obtaining filled-in data from a patient's home:
1. in a system setting interface, partial variables (which are considered by medical care to be variables capable of being submitted to a patient to fill in a report by himself, namely data which need to be directly collected from a patient family) are supported and selected, and a follow-up questionnaire is constructed;
2. and in a system setting interface, periodical setting of the release of the follow-up questionnaire is supported. Setting a period after discharge, such as 1 month after discharge and 3 months after discharge; the infant patient can also be set to be 1 year old, 2 years old and the like;
3. on a follow-up interface, the system supports browsing a patient list entering a follow-up period, and on the interface, medical personnel can manually select a follow-up table and issue the follow-up table to a patient needing follow-up;
4. the patient pays attention to the WeChat public number of the hospital when entering the group, when the system issues the questionnaire, the questionnaire is directly pushed to the patient who pays attention to the public number through the WeChat public number, the patient directly calls the follow-up table on a public number interface and completes the filling of the follow-up table, and the patient stores the data, namely uploads the data to the system.
In summary, the following steps:
the BPD follow-up visit information system based on multi-source data acquisition and integration fully utilizes the data source integration function to integrate data in a hospital information system, data self-declared by a child family and data to be input for medical care, so as to form a data set concerned by the completed BPD follow-up visit. The system is beneficial to comprehensively mastering clinical multi-modal data related to BPD disease occurrence and development in follow-up visits for medical care, and is displayed and applied in a centralized program, so that the nursing of the sick children in the whole period is promoted, and compared with the traditional outpatient service or telephone follow-up visits, the system greatly saves human resources and effectively improves the reliability.
It is noted that, herein, relational terms such as first and second, and the like may be used solely to distinguish one entity or action from another entity or action without necessarily requiring or implying any actual such relationship or order between such entities or actions. Also, the terms "comprises," "comprising," or any other variation thereof, are intended to cover a non-exclusive inclusion, such that a process, method, article, or apparatus that comprises a list of elements does not include only those elements but may include other elements not expressly listed or inherent to such process, method, article, or apparatus.
Although embodiments of the present invention have been shown and described, it will be appreciated by those skilled in the art that changes, modifications, substitutions and alterations can be made in these embodiments without departing from the principles and spirit of the invention, the scope of which is defined in the appended claims and their equivalents.

Claims (6)

1. A BPD follow-up information system based on multi-source data acquisition and integration is characterized in that: the BPD follow-up information system operates based on a computer network in a hospital, the BPD follow-up information system is arranged in a network in the hospital by a B/S framework, an application server and a database are positioned in a hospital internal network, a computer terminal in the hospital directly accesses the application server through a desktop browser to apply the system to carry out work, the application server implements mobile application notification service through a firewall and a front-end processor, and communication and data exchange between a public number and a mobile end of a patient are carried out by means of an embedded micro-message applet;
the BPD follow-up visit information system comprises a login interface and an authority interface, wherein the interface after login is a patient list, and is divided into three modules according to the follow-up visit stage requirements of the BPD, and the three modules are respectively: a patient admission condition module, a hospital treatment condition module and a post-discharge follow-up condition module;
the patient admission status module includes the following information content: basic information, birth history, maternal pregnancy history, family environment, family history and physical examination at the time of admission;
the hospitalization status module includes the following information: in hospital oxygen therapy situations, pulmonary surfactant use, mechanical ventilation situations, antibiotic use, test examinations;
the post-discharge follow-up condition module comprises the following information contents: smoking condition of family living environment and co-resident, vaccination condition, daily medication condition, respiratory evaluation, respiratory infection condition, home oxygen therapy condition, nasal feeding condition, nutrition evaluation, check condition in follow-up visit, and development condition;
each module is composed of a plurality of categories, and a plurality of related data variable names are set for medical care according to follow-up visit requirements under each category.
2. The BPD follow-up information system based on multi-source data collection and integration according to claim 1, wherein: the plurality of categories are subjected to standardized definition and are classified and set according to variable characteristics; the numerical variables are specific numerical values such as age, weight, height and the like; boolean variables are expressed as yes/no or presence/absence, such as oxygen uptake, use of nitric oxide, and the like; the enumeration type variable enumerates all possible values of the variable according to the variable characteristics, and shows that the enumeration type variable is a multi-choice of preset values, such as premature birth reasons, premature rupture of membranes, intrauterine infection, fetal distress and the like.
3. The BPD follow-up information system based on multi-source data collection and integration according to claim 1, wherein: the system carries out planning tasks at regular time every day, new patients meeting BPD diagnosis are grouped by retrieving a patient diagnosis list in a hospital database, and the grouped patients enter a follow-up patient list.
4. The BPD follow-up information system based on multi-source data collection and integration according to claim 3, wherein: the system acquires data corresponding to variables of two modules, namely the condition of admission and the treatment condition of the hospital from a hospital database according to the identification information of patients in the group, extracts, normalizes, checks and stores the data which are structurally stored in the hospital information system according to the data source, analyzes natural language of the content which is stored in the hospital information system in an unstructured mode such as natural language text, and extracts the corresponding value according to the variable setting.
5. The BPD follow-up information system based on multi-source data collection and integration according to claim 1, wherein: the system sends a questionnaire to a user, collects patient data in a mode filled by the user, the questionnaire is set in the system by medical personnel in charge of follow-up visit, selects data required to be filled by the patient from a follow-up visit module, automatically pushes the data to the patient at set follow-up visit time, and can also manually select a sending form to a specific user; after receiving the form, the patient can fill the form through the WeChat public number, the data filled and submitted by the patient directly enters the system and is displayed for follow-up medical care, and the medical care can confirm or correct according to the actual situation.
6. The BPD follow-up information system based on multi-source data collection and integration according to claim 1, wherein: after logging in the interface, a single patient is entered, and an electronic medical record report form (eCRF) is set according to the arrangement of a clinical research team.
CN202010897385.1A 2020-08-31 2020-08-31 BPD follow-up information system based on multi-source data acquisition and integration Pending CN112053749A (en)

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CN114283907A (en) * 2021-12-22 2022-04-05 中国人民解放军总医院 Follow-up data sharing method and system

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