CN112053749A - BPD follow-up information system based on multi-source data acquisition and integration - Google Patents

BPD follow-up information system based on multi-source data acquisition and integration Download PDF

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CN112053749A
CN112053749A CN202010897385.1A CN202010897385A CN112053749A CN 112053749 A CN112053749 A CN 112053749A CN 202010897385 A CN202010897385 A CN 202010897385A CN 112053749 A CN112053749 A CN 112053749A
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张晓波
周文浩
汤梁峰
曹云
陈超
徐虹
黄国英
祁媛媛
叶成杰
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Childrens Hospital of Fudan University
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Abstract

The invention relates to and discloses a BPD follow-up information system based on multi-source data acquisition and integration, wherein the BPD follow-up information system operates based on a computer network in a hospital, the BPD follow-up information system is arranged in an internal network of the hospital in a B/S (browser/server) architecture, and an application server and a database are positioned in the internal network of the hospital. The BPD follow-up visit information system based on multi-source data acquisition and integration fully utilizes the data source integration function to integrate data in a hospital information system, data self-declared by a child family and data to be input for medical care, so as to form a data set concerned by the completed BPD follow-up visit. The system is beneficial to comprehensively mastering clinical multi-modal data related to BPD disease occurrence and development in follow-up visits for medical care, and is displayed and applied in a centralized program, so that the nursing of the sick children in the whole period is promoted, and compared with the traditional outpatient service or telephone follow-up visits, the system greatly saves human resources and effectively improves the reliability.

Description

一种基于多来源数据采集和整合的BPD随访信息系统A BPD follow-up information system based on multi-source data collection and integration

技术领域technical field

本发明涉及BPD数据采集技术领域,具体为一种基于多来源数据采集和整合的BPD随访信息系统。The invention relates to the technical field of BPD data collection, in particular to a BPD follow-up information system based on multi-source data collection and integration.

背景技术Background technique

支气管肺发育不良(bronchopulmonarydysplasia,BPD)是一种小儿呼吸系统的慢性病症,是早产儿最常见的呼吸系统并发症。早产儿在救治过程中,和BPD相关的因素很多,包括胎龄、宫内发育迟缓、肺表面活性物质的缺乏、孕期母体情况、产前及产后感染、羊水或胎粪吸入等病史和营养不良、生长发育和精神运动发育迟缓、肺动脉高压等临床表现,以及在早产儿住院期间的氧疗、长期正压通气、抗生素和激素的使用等。Bronchopulmonary dysplasia (BPD) is a chronic disease of the respiratory system in children and is the most common respiratory complication in premature infants. During the treatment of premature infants, there are many factors related to BPD, including gestational age, intrauterine growth retardation, lack of pulmonary surfactant, maternal condition during pregnancy, prenatal and postpartum infection, amniotic fluid or meconium aspiration and other medical history and malnutrition. , growth and developmental and psychomotor retardation, pulmonary hypertension and other clinical manifestations, as well as oxygen therapy, long-term positive pressure ventilation, antibiotics and hormone use during hospitalization of premature infants.

BPD的患儿,常在早产儿时期住院治疗,在经历了住院氧疗、机械通气、抗感染治疗等初期治疗后,出院后需要家庭氧疗以及面临因吞咽问题而需要鼻饲等复杂的家庭照护。对于家庭居住环境、家庭成员吸烟、居住地空气状况、患儿的疫苗接种均需要充分评估。此类患儿在经过新生儿期的治疗后,需要长期的门诊随访及指导。Children with BPD are often hospitalized during the preterm period. After undergoing initial treatment such as inpatient oxygen therapy, mechanical ventilation, and anti-infective therapy, they need home oxygen therapy after discharge and face complicated home care such as nasal feeding due to swallowing problems. . The family living environment, smoking of family members, air conditions in the place of residence, and vaccination of children all need to be fully evaluated. Such children need long-term outpatient follow-up and guidance after treatment in the neonatal period.

BPD对患儿的呼吸、神经等系统有着重要影响,严重影响患儿生活质量,同时会对家庭及社会造成沉重的经济负担。基于BPD发病机制的复杂性、多因素性,以及BPD患儿对医护协同随访的需求,一个能将患儿在院及院外数据进行整合,实现多维数据的良好采集整合和呈现的系统,有助于在患者随访和管理中减少数据查询的工作量,并根据随访的需要实现数据的调阅和使用。BPD has an important impact on the respiratory, nervous and other systems of children, seriously affects the quality of life of children, and causes a heavy economic burden on families and society. Based on the complexity and multifactorial nature of the pathogenesis of BPD, and the needs of BPD children for coordinated follow-up with doctors and nurses, a system that can integrate children’s in-hospital and out-of-hospital data to achieve good collection, integration and presentation of multi-dimensional data is helpful. It can reduce the workload of data query in patient follow-up and management, and realize data access and use according to the needs of follow-up.

一个独立BPD患者在就诊中,疾病相关的数据来源包括医院信息系统中记录的患者临床表现、体格检查的发现;记录在医院信息系统中的检验检查报告、医师的诊断;医护在就诊中和患者面谈或电话沟通所获得的信息;患者在其他医院就诊的书面记录等。传统的随访基于医护提前建立的空白表单,载明就BPD患者随访所需要采集的项目,内容部分为空格形式,从患者的面对面咨询或者从就诊记录的调阅中获得信息,并填写表单中的空格,这种方法需要耗费大量查阅和登记的人工时间,且后续需要进一步录入电脑才能进行统计和数据运用。有部分信息门户的系统设计,以患者为主索引,建立基于患者的就诊记录的流水展示,但是“信息门户”的设计仅限于院内的就诊相关数据,而BPD这一疾病随访所需要的特征性信息散在于系统的各目录下,无法整合,比如:When an independent BPD patient visits a doctor, the sources of disease-related data include the patient’s clinical manifestations and physical examination findings recorded in the hospital information system; the inspection report recorded in the hospital information system, and the doctor’s diagnosis; Information obtained from interviews or telephone communications; written records of patient visits in other hospitals, etc. The traditional follow-up is based on a blank form established in advance by doctors and nurses, which specifies the items to be collected for follow-up of BPD patients. This method requires a lot of manual time for review and registration, and further input into the computer is required for statistics and data application. There are some system designs of information portals, with patients as the main index, and establishing a flow display based on patients' medical records, but the design of the "information portal" is limited to the data related to medical visits in the hospital. Information is scattered in various directories of the system and cannot be integrated, such as:

1、病人的病例存于医院的HIS(Hospital Information System,医院信息系统)系统中;2、影像检查报告如胸片报告,存于PACS(Picture Archiving and CommunicationSystems,医学影像管理系统)系统中;3、实验室检查报告如尿检,血检报告存于LIS(Laboratory Information System,实验室/检验信息系统)系统中。患者资料分别存于不同的服务器系统中,高度分散。因此需要建立一个专门的支气管肺发育不良(BPD)患者就诊系统,以及增加患者随访系统,患者家属自行填报。患儿出院时,家长扫描医院提供的公众号或小程序二维码,医院的医生会设置根据需要设定如半个月、一个月、两个个月等每隔一段时间推送一个微信公众号或小程序端的随访提醒和随访表单,患者家属通过微信公众号、小程序或PC、手机的浏览器等端口填写。1. The patient's case is stored in the hospital's HIS (Hospital Information System) system; 2. Imaging examination reports, such as chest X-ray reports, are stored in the PACS (Picture Archiving and Communication Systems, medical image management system) system; 3. . Laboratory test reports such as urine test and blood test reports are stored in the LIS (Laboratory Information System, laboratory/test information system) system. Patient data are stored in different server systems, which are highly dispersed. Therefore, it is necessary to establish a special treatment system for patients with bronchopulmonary dysplasia (BPD), as well as to increase the patient follow-up system, and the family members of the patients should fill in the report by themselves. When the child is discharged from the hospital, the parents scan the official account or the QR code of the mini program provided by the hospital, and the doctor in the hospital will set the settings according to their needs, such as half a month, one month, two months, etc. to push a WeChat public account at regular intervals. Or the follow-up reminder and follow-up form on the applet, and the family members of the patient fill in through the WeChat public account, the applet, or the browser of the PC or mobile phone.

发明内容SUMMARY OF THE INVENTION

本发明提供了一种基于多来源数据采集和整合的BPD随访信息系统,针对传统的设计书面表格进行BPD患儿相关随访数据采集,本发明对其进行了改进。The present invention provides a BPD follow-up information system based on multi-source data collection and integration. The present invention improves the traditional design of written forms for collecting relevant follow-up data of BPD children.

本发明提供如下技术方案:一种基于多来源数据采集和整合的BPD随访信息系统,所述BPD随访信息系统基于医院内电脑网络运行,所述BPD随访信息系统以B/S架构布置于医院内部网络,应用服务器和数据库位于医院内网,院内电脑终端通过桌面浏览器直接访问应用服务器应用本系统开展工作,应用服务器通过防火墙和前置机实施移动应用通知服务,借助嵌入微信的小程序或公众号进行和患者移动端的通信和数据交换;The present invention provides the following technical solutions: a BPD follow-up information system based on multi-source data collection and integration, the BPD follow-up information system is operated based on a computer network in a hospital, and the BPD follow-up information system is arranged in the hospital with a B/S structure The network, application server and database are located in the hospital intranet. The computer terminal in the hospital directly accesses the application server through the desktop browser to apply the system to carry out work. The application server implements the mobile application notification service through the firewall and front-end computer. communication and data exchange with the patient's mobile terminal;

BPD随访信息系统包含登录和权限界面,所述登录后的界面为患者列表,且根据BPD的随访阶段需求分为三大模块,三大模块分别为:患者入院情况模块、在院治疗情况模块、出院后随访情况模块;The BPD follow-up information system includes a login and authority interface. The login interface is a patient list, and is divided into three modules according to the needs of the follow-up stage of BPD. The three modules are: patient admissions module, in-hospital treatment module, Post-discharge follow-up module;

患者入院情况模块包括以下信息内容:基本信息、出生史、母亲孕产史、家庭环境、家族史、入院时体格检查;The patient admission module includes the following information: basic information, birth history, maternal history, family environment, family history, physical examination on admission;

在院治疗情况模块包括以下信息内容:在院氧疗情况,肺表面活性物质使用情况、机械通气情况、抗生素使用情况、检验检查情况;The in-hospital treatment module includes the following information: in-hospital oxygen therapy, pulmonary surfactant usage, mechanical ventilation, antibiotic usage, and inspections;

出院后随访情况模块包括以下信息内容:家庭居住环境和同住人员吸烟情况、预防接种情况、日常用药情况、呼吸评估、呼吸道感染情况、居家氧疗情况、鼻饲情况、营养评估、随访中检查检验情况、发育情况;The post-discharge follow-up module includes the following information: family living environment and smoking status of co-residents, vaccination status, daily medication status, respiratory assessment, respiratory tract infection, home oxygen therapy, nasal feeding, nutritional assessment, and follow-up examinations condition, development;

每一个模块由数个类别构成,而每个类别下为医护根据随访需要设置的若干条相关数据变量名称。Each module consists of several categories, and under each category are the names of several related data variables set by the medical staff according to the follow-up needs.

优选的,所述数个类别进行了标准化定义,根据变量特征进行分类设置;分为数值型变量为具体数值,如年龄、体重、身高等;布尔型变量以是/否或有/无表示,如吸氧、一氧化氮的使用等;枚举型变量则根据变量特征枚举变量所有可能取值,展示为对预设值的多选,如早产原因,枚举为胎膜早破、宫内感染、胎儿窘迫等。Preferably, the several categories are standardized and defined, and are classified and set according to variable characteristics; they are divided into numerical variables with specific numerical values, such as age, weight, height, etc.; Boolean variables are expressed as yes/no or yes/no, Such as oxygen inhalation, the use of nitric oxide, etc.; the enumeration variable enumerates all possible values of the variable according to the characteristics of the variable, and displays as multiple choices of preset values, such as the cause of premature birth, the enumeration is premature rupture of membranes, uterine Infection, fetal distress, etc.

优选的,所述系统每日定时进行计划任务,通过检索医院数据库中患者诊断列表,对符合BPD诊断的新患者进行入组,入组患者即进入随访患者列表。Preferably, the system regularly performs scheduled tasks every day, and by retrieving the patient diagnosis list in the hospital database, new patients who meet the BPD diagnosis are enrolled, and the enrolled patients are entered into the follow-up patient list.

优选的,所述对入组数据,实施计划任务下的数据自动采集,根据入组患者的身份识别信息,系统从医院数据库获取入院时情况、在院治疗情况这两个模块的变量所对应的数据,系统根据数据来源,对医院信息系统中已经结构化储存的数据进行目标的提取、标化、校验并储存,对医院信息系统中以自然语言文本等非结构化方式储存的内容,进行自然语言分析,根据变量设定,提取对应的值。Preferably, the group data is automatically collected under the planned task, and according to the identification information of the grouped patients, the system obtains from the hospital database the corresponding variables of the two modules: the condition of admission and the condition of in-hospital treatment. Data, the system extracts, standardizes, verifies and stores the data that has been structured and stored in the hospital information system according to the data source, and performs the content stored in the hospital information system in unstructured ways such as natural language text. Natural language analysis, according to the variable setting, extract the corresponding value.

优选的,所述系统给用户发送调查问卷,通过用户填写的方式收集患者数据,调查问卷由负责随访的医护人员在系统中设置,从随访模块中选择需要患者填写的数据,以设定的随访时间自动向患者推送,也可以手工向特定的用户选择发送表单;患者收到表单后可以通过微信公众号进行表单填写,患者填写并提交的数据直接进入系统并展示给随访医护,医护可以根据实际情况进行确认或修正。Preferably, the system sends a questionnaire to the user, and collects patient data by filling in the user's data. The questionnaire is set in the system by the medical staff responsible for follow-up. The time is automatically pushed to the patient, and the form can also be manually sent to a specific user; after receiving the form, the patient can fill in the form through the WeChat public account, and the data filled in and submitted by the patient directly enters the system and is displayed to the follow-up medical care. Confirm or correct the situation.

优选的,所述登录界面后,进入单一患者,则根据临床研究团队的编排,设置为电子病历报告表eCRF。Preferably, after the login interface is entered into a single patient, it is set as the electronic medical record report form eCRF according to the arrangement of the clinical research team.

该基于多来源数据采集和整合的BPD随访信息系统具备以下有益效果:The BPD follow-up information system based on multi-source data collection and integration has the following beneficial effects:

1、根据BPD随访需要,以医护设计的随访表,从医院信息系统中整合相关临床数据。1. According to the needs of BPD follow-up, the follow-up table designed by medical care is used to integrate relevant clinical data from the hospital information system.

2、从医院信息系统、患者家属自行填报以及医护录入多方整合随访所需数据,避免数据收集的二次录入。2. Integrate the data required for follow-up from the hospital information system, the patient's family members' self-reporting, and the medical and nursing input to avoid the second entry of data collection.

3、提供数据展示和运用的界面,并支持嵌入各应用系统。3. Provide an interface for data display and application, and support embedding in various application systems.

充分运用数据来源整合功能,将医院信息系统内的数据、患儿家庭自行申报的数据和医护需要录入的数据进行整合,形成完成的BPD随访所关注的数据集,有利于医护在随访中全面掌握和BPD疾病发生、发展相关的临床多模态数据,并于集中的程序中展示和运用,从而促进对患儿全周期的照护并较传统的门诊或电话随访的方式大幅度节约人力资源并有效提升可靠性。Make full use of the data source integration function to integrate the data in the hospital information system, the data reported by the children's family, and the data that medical care needs to enter, to form a data set that is concerned by the completed BPD follow-up, which is beneficial for medical and nursing to fully grasp during follow-up. Clinical multimodal data related to the occurrence and development of BPD disease are displayed and used in a centralized program, thereby promoting the full-cycle care of children and greatly saving human resources and effective compared with traditional outpatient or telephone follow-up methods. Improve reliability.

附图说明Description of drawings

图1为本发明数据整合系统图;Fig. 1 is the data integration system diagram of the present invention;

图2为本发明系统架构图;2 is a system architecture diagram of the present invention;

图3为本发明医患交互模式图。FIG. 3 is a diagram of a doctor-patient interaction mode according to the present invention.

具体实施方式Detailed ways

下面将结合本发明实施例中的附图,对本发明实施例中的技术方案进行清楚、完整地描述,显然,所描述的实施例仅仅是本发明一部分实施例,而不是全部的实施例。基于本发明中的实施例,本领域普通技术人员在没有做出创造性劳动前提下所获得的所有其他实施例,都属于本发明保护的范围。The technical solutions in the embodiments of the present invention will be clearly and completely described below with reference to the accompanying drawings in the embodiments of the present invention. Obviously, the described embodiments are only a part of the embodiments of the present invention, but not all of the embodiments. Based on the embodiments of the present invention, all other embodiments obtained by those of ordinary skill in the art without creative efforts shall fall within the protection scope of the present invention.

请参阅图1-3,一种基于多来源数据采集和整合的BPD随访信息系统,BPD随访信息系统基于医院内电脑网络运行,BPD随访信息系统以B/S架构布置于医院内部网络,应用服务器和数据库位于医院内网,院内电脑终端通过桌面浏览器直接访问应用服务器应用本系统开展工作,应用服务器通过防火墙和前置机实施移动应用通知服务,借助嵌入微信的小程序或公众号进行和患者移动端的通信和数据交换;Please refer to Figure 1-3, a BPD follow-up information system based on multi-source data collection and integration. The BPD follow-up information system runs on the computer network in the hospital. The BPD follow-up information system is arranged in the hospital's internal network in a B/S structure, and the application server And the database is located in the hospital intranet, the computer terminal in the hospital directly accesses the application server through the desktop browser to apply the system to work, the application server implements the mobile application notification service through the firewall and the front-end computer, and communicates with the patients with the help of the applet embedded in WeChat or the public account. Mobile communication and data exchange;

BPD随访信息系统包含登录和权限界面,登录后的界面为患者列表,登录界面后,进入单一患者,则根据临床研究团队的编排,设置为电子病历报告表eCRF,且根据BPD的随访阶段需求分为三大模块,三大模块分别为:患者入院情况模块、在院治疗情况模块、出院后随访情况模块;The BPD follow-up information system includes a login and permission interface. The interface after login is the patient list. After the login interface, if you enter a single patient, it will be set as the electronic medical record report form (eCRF) according to the arrangement of the clinical research team, and will be classified according to the needs of the follow-up stage of BPD. There are three modules, and the three modules are: patient admissions module, in-hospital treatment module, and post-discharge follow-up module;

患者入院情况模块包括以下内容:基本信息、出生史、母亲孕产史、家庭环境、家族史、入院时体格检查;The patient admission module includes the following: basic information, birth history, maternal history, family environment, family history, physical examination on admission;

在院治疗情况模块包括以下内容:在院氧疗情况,肺表面活性物质使用情况、机械通气情况、抗生素使用情况、检验检查情况;The in-hospital treatment module includes the following: in-hospital oxygen therapy, pulmonary surfactant usage, mechanical ventilation, antibiotic usage, and inspections;

出院后随访情况模块包括以下内容:家庭居住环境和同住人员吸烟情况、预防接种情况、日常用药情况、呼吸评估、呼吸道感染情况、居家氧疗情况、鼻饲情况、营养评估、随访中检查检验情况、发育情况;The post-discharge follow-up module includes the following: family living environment and smoking status of co-residents, vaccination status, daily medication status, respiratory assessment, respiratory tract infection, home oxygen therapy, nasal feeding, nutritional assessment, and inspections during follow-up , development;

每一个模块由数个类别构成,而每个类别下为医护根据随访需要设置的若干条相关数据变量名称。Each module consists of several categories, and under each category are the names of several related data variables set by the medical staff according to the follow-up needs.

数个类别进行了标准化定义,根据变量特征进行分类设置;分为数值型变量为具体数值,如年龄、体重、身高等;布尔型变量以是/否或有/无表示,如吸氧、一氧化氮的使用等;枚举型变量则根据变量特征枚举变量所有可能取值,展示为对预设值的多选,如早产原因,枚举为胎膜早破、宫内感染、胎儿窘迫等;Several categories have been standardized and defined, and they are classified and set according to the characteristics of the variables; they are divided into numerical variables with specific values, such as age, weight, height, etc.; Boolean variables are expressed as yes/no or yes/no, such as oxygen inhalation, a The use of nitric oxide, etc.; the enumerated variable enumerates all possible values of the variable according to the characteristics of the variable, and displays it as multiple choices of preset values, such as the cause of premature birth, which is enumerated as premature rupture of membranes, intrauterine infection, and fetal distress. Wait;

BPD患者的入组:系统每日定时进行计划任务,通过检索医院数据库中患者诊断列表,对符合BPD诊断的新患者进行入组,入组患者即进入随访患者列表;Enrollment of BPD patients: The system performs scheduled tasks every day. By retrieving the patient diagnosis list in the hospital database, new patients who meet the BPD diagnosis are enrolled, and the enrolled patients will enter the follow-up patient list;

诊疗和随访相关内容的生产:对入组数据,实施计划任务下的数据自动采集,根据入组患者的身份识别信息,系统从医院数据库获取入院时情况、在院治疗情况这两个模块的变量所对应的数据,系统根据数据来源,对医院信息系统中已经结构化储存的数据进行目标的提取、标化、校验并储存,对医院信息系统中以自然语言文本等非结构化方式储存的内容,进行自然语言分析,根据变量设定,提取对应的值;Production of related content for diagnosis, treatment and follow-up: For the enrolled data, the data collection under the planned task is carried out automatically. According to the identification information of the enrolled patients, the system obtains the variables of the two modules of the admission status and in-hospital treatment status from the hospital database. For the corresponding data, the system extracts, standardizes, verifies and stores the data that has been structured and stored in the hospital information system according to the data source. content, perform natural language analysis, and extract corresponding values according to variable settings;

患者自填资料的获取:系统给用户发送调查问卷,通过用户填写的方式收集患者数据,调查问卷由负责随访的医护人员在系统中设置,从随访模块中选择需要患者填写的数据,以设定的随访时间自动向患者推送,也可以手工向特定的用户选择发送表单;患者收到表单后可以通过微信公众号进行表单填写,患者填写并提交的数据直接进入系统并展示给随访医护,医护可以根据实际情况进行确认或修正。Acquisition of patient self-filled data: The system sends a questionnaire to the user, and collects patient data by filling in the user’s data. The questionnaire is set in the system by the medical staff in charge of follow-up, and the data to be filled in by the patient is selected from the follow-up module to set The follow-up time is automatically pushed to the patient, and the form can also be manually sent to a specific user; after receiving the form, the patient can fill in the form through the WeChat public account, and the data filled in and submitted by the patient directly enters the system and is displayed to the follow-up doctor, and the doctor can Confirm or correct according to the actual situation.

系统数据管理的实施方式:Implementation of system data management:

1、负责进行BPD患儿随访的医护人员以登录系统,根据检索定位需要随访的患者,点击患者信息行进入该患者数据界面;1. The medical staff responsible for the follow-up of BPD children can log in to the system, locate the patients who need follow-up according to the search, and click the patient information row to enter the patient data interface;

2、数据界面分为左侧导航栏和右侧内容栏,导航栏为树形结构,按系统模块分为多级目录,一级目录为随访阶段,包含入院情况、在院治疗情况、出院后随访情况,一级目录下为二级目录,入院情况包含基本信息、出生史、母亲孕产史、家庭环境、家族史、入院时体格检查等二级目录,点击二级目录中的模块名称,在内容栏则显示该模块所包含的具体内容,树形结构和分级目录的内容事先由新生儿科、呼吸科、儿科护理专业的学科专家根据BPD的随访要求确定;2. The data interface is divided into a left navigation bar and a right content bar. The navigation bar is a tree structure, and is divided into multi-level directories according to system modules. The first-level directory is the follow-up stage, including admission, in-hospital treatment, and after discharge. Follow-up, the first-level category is the second-level category, and the admission status includes basic information, birth history, maternal history, family environment, family history, physical examination on admission and other second-level categories. Click the module name in the second-level category. In the content column, the specific content contained in the module is displayed. The content of the tree structure and hierarchical directory is determined in advance by subject experts in neonatology, respiratory department, and pediatric nursing according to the follow-up requirements of BPD;

3、根据系统设定的数据来源,已经从医院信息系统获得的数据、从患者家属自行填报获得的数据已经自动填充,系统支持人工核查系统自动获取的数据,对存疑数据调阅原始资料核查,并支持人工修正,经人工录入改写的数据带有标识,对于未能自动获取的数据或不存在的数据,可以人工录入填充的方式进行补充;3. According to the data source set by the system, the data that has been obtained from the hospital information system and the data that has been reported by the patient's family have been automatically filled in. The system supports manual verification of the data automatically obtained by the system, and the original data is checked for suspicious data. And support manual correction, the data that has been manually entered and rewritten is marked, and the data that cannot be automatically obtained or the data that does not exist can be supplemented by manual entry and filling;

4、数据的检索和运用,系统支持对所有变量名实施检索,并支持多种布尔逻辑下的组合检索,对检索结果可以在新页面展示和进一步导出,系统也支持对检索式的保存和对历史检索的回顾。4. Data retrieval and application, the system supports retrieval of all variable names, and supports combined retrieval under various Boolean logics. The retrieval results can be displayed on a new page and further exported. The system also supports the storage and retrieval of retrieval formulas. A review of historical retrieval.

系统从患者家庭获取填报数据的实施方式:The implementation of the system to obtain the filling data from the patient's family:

1、在系统设置界面,支持选择部分变量(医护认为可以交由患者自行填写报告的变量即需要从患者家庭直接采集的数据),构建随访调查表;1. In the system setting interface, support the selection of some variables (the variables that doctors and nurses think can be handed over to the patient to fill in the report, that is, the data that needs to be collected directly from the patient's family), and build a follow-up questionnaire;

2、在系统设置界面,支持对随访调查表的发放进行周期设置。设置方式为出院后的周期,如出院后1月,出院后3月;也可以设置为患儿1岁时,2岁时等;2. In the system setting interface, support the periodic setting of the issuance of the follow-up questionnaire. The setting method is the cycle after discharge, such as 1 month after discharge and 3 months after discharge; it can also be set as the child is 1 year old, 2 years old, etc.;

3、在随访界面,系统支持浏览进入随访周期的患者列表,在此界面,医护人员可以手动选择随访表,并给需要随访的患者发放随访表;3. On the follow-up interface, the system supports browsing the list of patients who have entered the follow-up cycle. On this interface, medical staff can manually select a follow-up form and issue a follow-up form to patients who need follow-up;

4、患方在入组时关注医院的微信公众号,在系统发放调查表时,调查表通过微信公众号直接推送给已经关注公众号的患方,患方直接在公众号界面调用随访表,并完成对随访表的填写,患方保存数据,即上传至系统。4. The patient should pay attention to the hospital's WeChat public account when joining the group. When the system distributes the questionnaire, the questionnaire will be directly pushed to the patients who have followed the official account through the WeChat public account, and the patient will directly call the follow-up form on the public account interface. After completing the filling in the follow-up form, the patient saves the data and uploads it to the system.

综上所述:In summary:

该基于多来源数据采集和整合的BPD随访信息系统,它充分运用数据来源整合功能,将医院信息系统内的数据、患儿家庭自行申报的数据和医护需要录入的数据进行整合,形成完成的BPD随访所关注的数据集。有利于医护在随访中全面掌握和BPD疾病发生、发展相关的临床多模态数据,并于集中的程序中展示和运用,从而促进对患儿全周期的照护并较传统的门诊或电话随访的方式大幅度节约人力资源并有效提升可靠性。The BPD follow-up information system based on multi-source data collection and integration makes full use of the data source integration function to integrate the data in the hospital information system, the data reported by the patient's family, and the data that needs to be entered by medical care to form a completed BPD. Follow-up datasets of interest. It is helpful for medical staff to fully grasp the clinical multimodal data related to the occurrence and development of BPD disease during follow-up, and to display and apply it in a centralized procedure, thereby promoting the full-cycle care of children and making it easier than traditional outpatient or telephone follow-up. The method greatly saves human resources and effectively improves reliability.

需要说明的是,在本文中,诸如第一和第二等之类的关系术语仅仅用来将一个实体或者操作与另一个实体或操作区分开来,而不一定要求或者暗示这些实体或操作之间存在任何这种实际的关系或者顺序。而且,术语“包括”、“包含”或者其任何其他变体意在涵盖非排他性的包含,从而使得包括一系列要素的过程、方法、物品或者设备不仅包括那些要素,而且还包括没有明确列出的其他要素,或者是还包括为这种过程、方法、物品或者设备所固有的要素。It should be noted that, in this document, relational terms such as first and second are only used to distinguish one entity or operation from another entity or operation, and do not necessarily require or imply any relationship between these entities or operations. any such actual relationship or sequence exists. Moreover, the terms "comprising", "comprising" or any other variation thereof are intended to encompass a non-exclusive inclusion such that a process, method, article or device that includes a list of elements includes not only those elements, but also includes not explicitly listed or other elements inherent to such a process, method, article or apparatus.

尽管已经示出和描述了本发明的实施例,对于本领域的普通技术人员而言,可以理解在不脱离本发明的原理和精神的情况下可以对这些实施例进行多种变化、修改、替换和变型,本发明的范围由所附权利要求及其等同物限定。Although embodiments of the present invention have been shown and described, it will be understood by those skilled in the art that various changes, modifications, and substitutions can be made in these embodiments without departing from the principle and spirit of the invention and modifications, the scope of the present invention is defined by the appended claims and their equivalents.

Claims (6)

1. A BPD follow-up information system based on multi-source data acquisition and integration is characterized in that: the BPD follow-up information system operates based on a computer network in a hospital, the BPD follow-up information system is arranged in a network in the hospital by a B/S framework, an application server and a database are positioned in a hospital internal network, a computer terminal in the hospital directly accesses the application server through a desktop browser to apply the system to carry out work, the application server implements mobile application notification service through a firewall and a front-end processor, and communication and data exchange between a public number and a mobile end of a patient are carried out by means of an embedded micro-message applet;
the BPD follow-up visit information system comprises a login interface and an authority interface, wherein the interface after login is a patient list, and is divided into three modules according to the follow-up visit stage requirements of the BPD, and the three modules are respectively: a patient admission condition module, a hospital treatment condition module and a post-discharge follow-up condition module;
the patient admission status module includes the following information content: basic information, birth history, maternal pregnancy history, family environment, family history and physical examination at the time of admission;
the hospitalization status module includes the following information: in hospital oxygen therapy situations, pulmonary surfactant use, mechanical ventilation situations, antibiotic use, test examinations;
the post-discharge follow-up condition module comprises the following information contents: smoking condition of family living environment and co-resident, vaccination condition, daily medication condition, respiratory evaluation, respiratory infection condition, home oxygen therapy condition, nasal feeding condition, nutrition evaluation, check condition in follow-up visit, and development condition;
each module is composed of a plurality of categories, and a plurality of related data variable names are set for medical care according to follow-up visit requirements under each category.
2. The BPD follow-up information system based on multi-source data collection and integration according to claim 1, wherein: the plurality of categories are subjected to standardized definition and are classified and set according to variable characteristics; the numerical variables are specific numerical values such as age, weight, height and the like; boolean variables are expressed as yes/no or presence/absence, such as oxygen uptake, use of nitric oxide, and the like; the enumeration type variable enumerates all possible values of the variable according to the variable characteristics, and shows that the enumeration type variable is a multi-choice of preset values, such as premature birth reasons, premature rupture of membranes, intrauterine infection, fetal distress and the like.
3. The BPD follow-up information system based on multi-source data collection and integration according to claim 1, wherein: the system carries out planning tasks at regular time every day, new patients meeting BPD diagnosis are grouped by retrieving a patient diagnosis list in a hospital database, and the grouped patients enter a follow-up patient list.
4. The BPD follow-up information system based on multi-source data collection and integration according to claim 3, wherein: the system acquires data corresponding to variables of two modules, namely the condition of admission and the treatment condition of the hospital from a hospital database according to the identification information of patients in the group, extracts, normalizes, checks and stores the data which are structurally stored in the hospital information system according to the data source, analyzes natural language of the content which is stored in the hospital information system in an unstructured mode such as natural language text, and extracts the corresponding value according to the variable setting.
5. The BPD follow-up information system based on multi-source data collection and integration according to claim 1, wherein: the system sends a questionnaire to a user, collects patient data in a mode filled by the user, the questionnaire is set in the system by medical personnel in charge of follow-up visit, selects data required to be filled by the patient from a follow-up visit module, automatically pushes the data to the patient at set follow-up visit time, and can also manually select a sending form to a specific user; after receiving the form, the patient can fill the form through the WeChat public number, the data filled and submitted by the patient directly enters the system and is displayed for follow-up medical care, and the medical care can confirm or correct according to the actual situation.
6. The BPD follow-up information system based on multi-source data collection and integration according to claim 1, wherein: after logging in the interface, a single patient is entered, and an electronic medical record report form (eCRF) is set according to the arrangement of a clinical research team.
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