CN110827944A - Rare disease case registration system based on B/S framework - Google Patents
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- G16H50/00—ICT specially adapted for medical diagnosis, medical simulation or medical data mining; ICT specially adapted for detecting, monitoring or modelling epidemics or pandemics
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Abstract
The invention discloses a rare disease case registration system based on a B/S framework, which comprises a client, a Web application server and a database server, wherein the Web application server is in communication connection with the client through the Internet, the database server is in communication connection with the Web application server through a switch, the client performs data interaction with the Web application server through a Web browser, the Web application server comprises a user identity authentication and authority management component, an audit management component, a metadata management component, a form template management component and a rare disease case data management component, the form template management component is in communication connection with the metadata management component, the rare disease case data management component is in communication connection with the form template management component, and the database server comprises a rare disease case database server and a metadata database server. The system provided by the invention provides a plurality of easy-to-use and reliable tools, and can efficiently and comprehensively collect various rare disease cases, thereby laying a foundation for the next researcher to develop effective rare disease research and improving the diagnosis efficiency of rare diseases.
Description
Technical Field
The invention relates to the technical field of medical information systems, in particular to a rare disease case registration system based on a B/S framework.
Background
The rare diseases are called 'rare diseases' for short, also called 'orphan diseases', and the name suggests that the disease rate is very low and the diseases are rare. Most rare diseases are chronic and serious diseases that are often life threatening. Approximately 80% of rare diseases are caused by genetic defects, and thus rare diseases are generally referred to as "rare genetic diseases". According to the report of the World Health Organization (WHO), more than 5000 recognized rare diseases exist at present, and account for about 10% of the human disease types; about 50 percent of rare diseases can be attacked at birth or in childhood, the disease condition is usually and rapidly progressed, the death rate is high, most of the diseases have no effective treatment method, and great pain is caused to patients.
The rare diseases are relative, dynamic and variable concepts, the definition and the division of the rare diseases do not have a unified standard in different countries and regions of the world, and different definitions of the rare diseases in each country are related to the population, the economic development level, the incentive policy of research and development of rare medicines and the coverage range of diagnosis and treatment costs of the rare diseases. China medical society of medicine, genetics, in 5 and 17 months 2010, held up a conference of related experts in Shanghai, agreed on Chinese rare disease definitions: considering that the population base of China is large, referring to the incidence rate of rare diseases in areas such as hong Kong and Taiwan in China and peripheral countries such as Japan, the disease rate of the rare diseases is defined as less than one fiftieth of ten-thousandth; a genetic disease with a prevalence of less than one in ten thousand in newborns can be defined as a rare genetic disease.
For researchers, a large sample of case data must be based on when conducting rare disease studies. However, most research institutions currently create a system for research and management of a certain disease. Most of these systems employ the system architecture of C/S. Only case data acquisition and disease research in a single small range can be realized, effective information cannot be obtained from mass data, and related operations such as coordination work and case sharing among different medical institutions cannot be realized. Because research schemes and required data of different rare diseases are different, researchers need to spend a lot of time and energy to make corresponding research forms to collect corresponding data when researching different rare diseases, and great inconvenience is brought to the researchers. In addition, data among various research institutions form data islands, and the scattering of the same rare disease research data in different medical institutions cannot form a scale sample, which is the biggest problem in rare disease research at present. Further, there is no effective technical means for accurately counting the cases of each rare disease.
In summary, in view of the problems in the prior art, there is a need in the art for an internet platform that can achieve convenient, efficient and comprehensive registration of rare cases.
Disclosure of Invention
In view of this, an embodiment of the present invention provides a B/S architecture-based rare disease case registration system, which can solve the problems that the conventional system cannot realize convenient, efficient, comprehensive registration and accurate statistics of rare disease cases.
In view of the above objects, an aspect of the embodiments of the present invention provides a B/S architecture-based rare disease case registration system, which includes a client, a Web application server communicatively connected to the client via the internet, and a database server communicatively connected to the Web application server via a switch,
the client side performs data interaction with the Web application server through a Web browser,
the Web application server comprises a user identity authentication and authority management component, an auditing management component, a metadata management component, a form template management component in communication connection with the metadata management component and a rare case data management component in communication connection with the form template management component,
the database server includes a rare case database server and a metadata database server.
The B/S architecture based rare case registration system described above, preferably, the clients include a researcher client and an administrator client,
the client of the researcher comprises a user registration information sending unit, a file editing unit, a form template memory, a case data acquisition and transmission unit, and an HTML receiving unit, an HTML analyzing unit and a page display unit which are connected in sequence,
the administrator client comprises a user registration information sending unit, a data maintenance unit, and an HTML receiving unit, an HTML analyzing unit and a page display unit which are connected in sequence.
In the B/S architecture-based rare disease case registration system, preferably, the form template storage stores a research form template made by a researcher for a corresponding rare disease.
In the B/S architecture-based rare disease case registration system, preferably, the metadata base server stores metadata and a dictionary, wherein the metadata and the dictionary are required by a researcher for designing a research form template, the metadata includes public metadata and private metadata, and the dictionary includes a public dictionary and a private dictionary.
In the B/S architecture-based rare disease case registration system, preferably, the form template management component includes a workflow management unit.
In the B/S architecture-based rare disease case registration system, the rare disease case data management component preferably includes a case statistics unit.
In the B/S architecture-based rare disease case registration system described above, preferably, the rare disease case database server stores case data collected by a researcher using a research form template designed by the form template management component and case statistical data generated by the case statistical unit.
In the rare disease case registration system based on the B/S architecture, preferably, the Web application server further includes a case follow-up management component in communication connection with the rare disease case data management component.
Advantageous effects
The rare disease case registration system based on the B/S framework can assist researchers to design a research form template in an autonomous and visual mode, help the researchers to produce attractive and practical research forms more simply and quickly, effectively collect relevant case data by using the research forms, then gather case data collected by the researchers in hospitals and research institutions through the system, and clean, convert and load the data through a data processing center. Through data processing, an authoritative and timely updated general and special medical data database is formed, a medical data center is constructed, and data retrieval can be directly carried out on the data center. Therefore, a foundation is laid for the next big data analysis and disease research of case data. In addition, the system can accurately count the summarized case data and show the data to all researchers in various chart forms. Meanwhile, a system administrator can perform regular maintenance on case data, statistical data, metadata, and the like.
Drawings
FIG. 1 is a block diagram of a rare disease case registration system based on a B/S architecture according to an embodiment of the present invention;
FIG. 2 is a schematic block diagram of a researcher client according to one embodiment of the present invention;
FIG. 3 is a schematic block diagram of an administrator client, according to one embodiment of the present invention;
FIG. 4 is a schematic hierarchical architecture diagram of a metadata management component according to one embodiment of the present invention; and
FIG. 5 is a schematic hierarchical diagram of a form template management component according to one embodiment of the invention.
Detailed Description
The following examples are intended to illustrate the invention but are not intended to limit the scope of the invention. Unless otherwise specified, the technical means used in the examples are conventional means well known to those skilled in the art.
In view of the above, the embodiment of the present invention provides an embodiment of a rare disease case registration system. The rare disease case registration system adopts a B/S (Browser/Server) framework, and the B/S framework adopts a working mode of Browser request and Server response. Fig. 1 is a schematic structural diagram of the B/S architecture-based rare disease case registration system according to the embodiment. As shown in fig. 1, the overall architecture of the B/S architecture based rare medical condition registration system may include a client 101, a Web application server 102 communicatively connected to the client 101 through the internet, and database servers 104, 105 communicatively connected to the Web application server 102 through a switch 103. The client 101 performs data interaction with the Web application server 102 through a Web browser. The database server software used in this embodiment may be in a version of mysql5.0 or more. The client browser can be various mainstream browsers such as IE, Firefox, Google Chrome and the like. The client shown in fig. 1 may comprise a PC as an example, but it will be appreciated by a person skilled in the art that it may also comprise any mobile terminal. The Web application server 102 can include a user authentication and rights management component 106, an audit management component 107, a metadata management component 108, a form template management component 109 communicatively coupled to the metadata management component 108, and a rare case data management component 110 communicatively coupled to the form template management component 109. In particular, the database servers may include a rare case database server 104 and a metadata database server 105.
In a preferred embodiment, the clients may include a researcher client and an administrator client.
As shown in fig. 2, the researcher client 20 may include a user registration information transmitting unit 201, a file editing unit 202, a form template storage 203, a case data collecting and transmitting unit 204, and an HTML receiving unit 205, an HTML parsing unit 206, and a page display unit 207 connected in sequence. The case data collection and transmission unit 204 may be connected to existing information collection systems of hospitals and research institutions. The researcher inputs a user name and a password at the researcher client 20 and sends the user name and the password to the Web application server 102 through the user registration information sending unit 201, the user identity authentication and authority management component 106 verifies the login information and distributes the access authority, and after the verification of the login information is passed, the researcher can freely access the system module which is allowed to be accessed according to the authority. The main purpose of a researcher registering rare disease cases is to conduct subsequent cohort studies, so prior to registering a case, it is necessary to first review whether the cohort study to be conducted meets the study conditions. To achieve this, the researcher may edit the relevant documents to be submitted, such as application documents, list of group members for proposal writing, list of group members for argumentation experts, startup documents, etc., by using the document editing unit 202, wherein the application documents may include the application profiles, application books, disease introduction, diagnosis criteria, disease cohort study schemes, research tables, list and unit of makers of research schemes and research tables, research schemes and evidence reports of research tables, etc., and the startup documents may include ethical lots and informed consent. After the file is edited, the file is uploaded to the Web application server 102, the audit management component 107 forwards the file to a researcher with audit authority to audit the queue research, and the researcher can register rare disease cases after the audit is passed. Firstly, metadata of a researcher is designed through the metadata management component 108, then the designed metadata is sent to the form template management component 109, the form template management component 109 utilizes the corresponding metadata and the dictionary to design a research form template, a plurality of designed research form templates of the same disease are spliced into a workflow, and one workflow is a complete disease research form. Meanwhile, the designed research form template can be stored in the form template storage 203 for later use. Finally, in the rare disease case data management component 110, the case data collected by the case data collection and transmission unit 204 is recorded into the corresponding study form template generated by the form template management component 109 to form a final complete study form, and the subsequent queue study can be performed based on the data in the study forms. The HTML receiving unit 205 is configured to receive an HTML source file returned by the Web application server 102 in response to a request sent by the client browser, the HTML parsing unit 206 is configured to parse the received HTML source file, implement rendering on a page in the parsing process, and the page display unit 207 is configured to display a finally rendered page.
As shown in fig. 3, the administrator client 30 may include a user registration information transmitting unit 301, a data maintenance unit 302, and an HTML receiving unit 303, an HTML parsing unit 304, and a page display unit 305 connected in sequence. The administrator inputs a user name and a password at the administrator client 30 and sends the user name and the password to the Web application server 102 through the user registration information sending unit 301, the user identity authentication and authority management component 106 verifies the login information and distributes the access authority, and after the login information is verified, the administrator can freely access the system module which is allowed to be accessed according to the authority. The administrator can perform regular maintenance on case data, statistical data, metadata, and the like using the data maintenance unit 302. The HTML receiving unit 303 is configured to receive an HTML source file returned by the Web application server 102 in response to a request sent by the client browser, the HTML parsing unit 304 is configured to parse the received HTML source file, rendering a page is implemented in the parsing process, and the page display unit 305 is configured to display a finally rendered page.
The user identity authentication and permission management component 106 manages user registration information and access permissions of various users, and verifies the user registration information of the users when the users log in an application system of an application server. The user authentication and authorization management component 106 performs authentication through a unified user management mechanism to determine the access content (access authorization) of the user. The personal user password supports end-to-end encryption through the security control, and the password is stored after being encrypted; and limits the number of consecutive login failures.
After receiving the above-mentioned related file which needs to be submitted for researching a certain disease, the audit management component 107 forwards the file to the researcher with audit authority for auditing the queue research, and returns the audit result to the researcher. Rare cases can be registered if the audit is passed, i.e. a cohort study can be initiated, and the relevant files described above need to be resubmitted if the audit is not passed.
FIG. 4 is a schematic hierarchical diagram of a metadata management component according to one embodiment of the present invention. As shown in fig. 4, the overall architecture of the metadata management component 108 is divided into: the system comprises a user layer, a display layer, an application layer, a data layer, a database and a hardware layer. The users of the system are divided into two categories: the system comprises a researcher and a manager, wherein the researcher can manage metadata and dictionaries required by form design of the researcher, and can also use existing public metadata and dictionaries in the system, and the public data needs to be maintained by system managers. The application layer of the system is mainly divided into the following applications: metadata management, comprising: the two types of public metadata and private metadata support the functions of metadata addition, editing, format definition, deletion, backup export, restoration, search and the like; dictionary management, also including: the public dictionary and the private dictionary support functions of adding, editing, deleting, backup exporting, restoring, searching and the like of the dictionary; a system log, comprising: the system comprises a metadata log, a dictionary log and the like, and is mainly used for recording data operation changes of important applications in the system. The metadata may include, for example, the patient's name, gender, age, region, contact, ethnicity, and so on. When making a disease form, a user typically uses data items having an option type, such as metadata with a gender, which has three options: male, female, unknown. The user needs to add a dictionary to this metadata and set a value field to the dictionary. The value range information includes: name, code, input code, operation, etc.
FIG. 5 is a schematic hierarchical diagram of a form template management component according to one embodiment of the invention. As shown in fig. 5, the overall system architecture of the form template management component 109 is divided into: the system comprises a user layer, a display layer, an application layer, a data layer, a database and a hardware layer. The users of the system are researchers and managers, the users can make the research forms of the rare diseases through the system, and the form template management component 109 particularly comprises a workflow management unit for simultaneously managing a plurality of workflows, for example, a plurality of designed research form templates of the same disease are spliced into one workflow, and one workflow is a complete disease research form. The main application of the system is as follows: form templates, workflow management, system logs, and the like. The application layer of the system is mainly divided into the following applications: form template management, which may maintain form template information, includes but is not limited to: operations such as adding, editing, deleting, searching, designing, previewing, backing up export, restoring and releasing; workflow management, which may maintain workflow information, includes but is not limited to: operations such as adding, editing, deleting, searching, designing, previewing, backing up export, restoring and releasing; a system log, comprising: the system comprises a form template log, a workflow log and the like, and is mainly used for recording data operation changes of important applications in the system.
In a preferred embodiment, the rare disease case data management component 110 includes a case statistical unit for counting case data of each rare disease and updating the statistical result in real time according to the collection situation.
The rare disease case database server 104 is used for storing case data collected by researchers using a study form template designed by the form template management component and case statistical data generated by a case statistical unit, and includes, for example, a database storing information on each rare disease case and a database storing statistical results of each rare disease case. The metadata repository server 105 is used to store metadata and dictionaries that are needed by researchers to perform study form template design, the metadata including public metadata and private metadata and the dictionaries including public dictionaries and private dictionaries. The database system adopted by the invention can support TB-level data storage, can support more than 5000 concurrent connections and supports mainstream SAN equipment.
In a preferred embodiment, the Web application server 102 also includes a case follow-up management component communicatively coupled to the rare case data management component. By utilizing the case follow-up management component, a follow-up plan can be added and information such as follow-up time, a follow-up program, advance reservation time and the like can be designated, and meanwhile, the follow-up record of the follow-up time can be recorded. The follow-up records may be aggregated with the study form generated by the rare case data management component 110 with the case information recorded as sample data for a queued study.
In addition, the apparatuses, devices and the like disclosed in the embodiments of the present invention may be various electronic terminal devices, such as a mobile phone, a Personal Digital Assistant (PDA), a tablet computer (PAD), a smart television and the like, or may be large terminal devices, such as a server and the like, and therefore the scope of protection disclosed in the embodiments of the present invention should not be limited to a specific type of system or device.
Those of skill would further appreciate that the various illustrative logical blocks, modules, circuits, and algorithm steps described herein may be implemented as electronic hardware, computer software, or combinations of both. To clearly illustrate this interchangeability of hardware and software, various illustrative components, blocks, modules, circuits, and steps have been described above generally in terms of their functionality. Whether such functionality is implemented as software or hardware depends upon the particular application and design constraints imposed on the overall system. Skilled artisans may implement the described functionality in varying ways for each particular application, but such implementation decisions should not be interpreted as causing a departure from the scope of the disclosed embodiments of the present invention.
The various illustrative logical blocks, modules, and circuits described herein may be implemented or performed with the following components designed to perform the functions described herein: a general purpose processor, a Digital Signal Processor (DSP), an Application Specific Integrated Circuit (ASIC), a Field Programmable Gate Array (FPGA) or other programmable logic device, discrete gate or transistor logic, discrete hardware components, or any combination of these components. A general purpose processor may be a microprocessor, but in the alternative, the processor may be any conventional processor, controller, microcontroller, or state machine. A processor may also be implemented as a combination of computing devices, e.g., a combination of a DSP and a microprocessor, a plurality of microprocessors, one or more microprocessors in conjunction with a DSP, and/or any other such configuration.
Although the invention has been described in detail hereinabove with respect to a general description and specific embodiments thereof, it will be apparent to those skilled in the art that modifications or improvements may be made thereto based on the invention. Accordingly, such modifications and improvements are intended to be within the scope of the invention as claimed.
Claims (8)
1. A rare disease case registration system based on a B/S (browser/Server) architecture is characterized by comprising a client, a Web application server and a database server, wherein the Web application server is in communication connection with the client through the Internet, the database server is in communication connection with the Web application server through a switch,
the client side performs data interaction with the Web application server through a Web browser,
the Web application server comprises a user identity authentication and authority management component, an auditing management component, a metadata management component, a form template management component in communication connection with the metadata management component and a rare case data management component in communication connection with the form template management component,
the database server includes a rare case database server and a metadata database server.
2. The B/S architecture based rare medical condition registration system of claim 1, wherein the clients comprise a researcher client and an administrator client,
the client of the researcher comprises a user registration information sending unit, a file editing unit, a form template memory, a case data acquisition and transmission unit, and an HTML receiving unit, an HTML analyzing unit and a page display unit which are connected in sequence,
the administrator client comprises a user registration information sending unit, a data maintenance unit, and an HTML receiving unit, an HTML analyzing unit and a page display unit which are connected in sequence.
3. The B/S architecture based rare disease case registration system of claim 2, wherein the form template storage stores study form templates made by researchers for respective rare diseases.
4. The B/S architecture based rare medical condition registration system of claim 1, wherein the metadata repository server stores metadata and dictionaries that are needed by researchers to design study form templates, the metadata comprising public metadata and private metadata and the dictionaries comprising public dictionaries and private dictionaries.
5. The B/S architecture based rare medical condition registration system of claim 1, wherein the form template management component comprises a workflow management unit.
6. The B/S architecture based rare disease case registration system of claim 1, wherein the rare disease case data management component comprises a case statistics unit.
7. The B/S architecture based rare medical condition registration system of claim 6, wherein the rare medical condition database server stores case data collected by researchers using a research form template designed by the form template management component and case statistical data generated by the case statistical unit.
8. The B/S architecture based rare disease case registration system of claim 1, wherein the Web application server further comprises a case follow-up management component communicatively connected to the rare disease case data management component.
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