CN111009329A - Rare disease study group management method, storage medium, and computer program product - Google Patents

Rare disease study group management method, storage medium, and computer program product Download PDF

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CN111009329A
CN111009329A CN201911217741.4A CN201911217741A CN111009329A CN 111009329 A CN111009329 A CN 111009329A CN 201911217741 A CN201911217741 A CN 201911217741A CN 111009329 A CN111009329 A CN 111009329A
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group
user
center
creating
server
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金晔
弓孟春
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Peking Union Medical College Hospital Chinese Academy of Medical Sciences
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    • G—PHYSICS
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    • G16H40/20—ICT specially adapted for the management or administration of healthcare resources or facilities; ICT specially adapted for the management or operation of medical equipment or devices for the management or administration of healthcare resources or facilities, e.g. managing hospital staff or surgery rooms
    • G—PHYSICS
    • G16—INFORMATION AND COMMUNICATION TECHNOLOGY [ICT] SPECIALLY ADAPTED FOR SPECIFIC APPLICATION FIELDS
    • G16H—HEALTHCARE INFORMATICS, i.e. INFORMATION AND COMMUNICATION TECHNOLOGY [ICT] SPECIALLY ADAPTED FOR THE HANDLING OR PROCESSING OF MEDICAL OR HEALTHCARE DATA
    • G16H70/00—ICT specially adapted for the handling or processing of medical references
    • G16H70/60—ICT specially adapted for the handling or processing of medical references relating to pathologies

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Abstract

The invention discloses a rare disease research group management method, which comprises the following steps: the method comprises the steps that a server receives a single center group creating request or a multi-center group creating request sent by a client corresponding to a user who makes a group creating request; the server directly creates a corresponding single-center group according to the single-center group creating request and allocates a group identifier for the single-center group, or the server verifies the multi-center group creating request, if the verification is passed, the server creates a corresponding multi-center group according to the multi-center group creating request and allocates a group identifier for the multi-center group, and if the verification is not passed, the server sends a multi-center group verification result to a client corresponding to a user who provides the group creating request. According to the invention, researchers researching the same disease can form a group, and intra-group data sharing is realized, so that effective rare disease research can be conveniently carried out.

Description

Rare disease study group management method, storage medium, and computer program product
Technical Field
The invention relates to the technical field of group management, in particular to a rare disease research group management method, a storage medium and a computer program product.
Background
The rare diseases are called 'rare diseases' for short, also called 'orphan diseases', and the name suggests that the disease rate is very low and the diseases are rare. Most rare diseases are chronic and serious diseases that are often life threatening. Approximately 80% of rare diseases are caused by genetic defects, and thus rare diseases are generally referred to as "rare genetic diseases". According to the report of the World Health Organization (WHO), more than 5000 recognized rare diseases exist at present, and account for about 10% of the human disease types; about 50 percent of rare diseases can be attacked at birth or in childhood, the disease condition is usually and rapidly progressed, the death rate is high, most of the diseases have no effective treatment method, and great pain is caused to patients.
The rare diseases are relative, dynamic and variable concepts, the definition and the division of the rare diseases do not have a unified standard in different countries and regions of the world, and different definitions of the rare diseases in each country are related to the population, the economic development level, the incentive policy of research and development of rare medicines and the coverage range of diagnosis and treatment costs of the rare diseases. China medical society of medicine, genetics, in 5 and 17 months 2010, held up a conference of related experts in Shanghai, agreed on Chinese rare disease definitions: considering that the population base of China is large, referring to the incidence rate of rare diseases in areas such as hong Kong and Taiwan in China and peripheral countries such as Japan, the disease rate of the rare diseases is defined as less than one fiftieth of ten-thousandth; a genetic disease with a prevalence of less than one in ten thousand in newborns can be defined as a rare genetic disease.
For researchers, a large number of case data samples are required to be used as a basis when a rare disease research is carried out, however, due to the extremely low prevalence rate of the rare disease, the collection of relevant case data is not an easy matter, data among research institutions form data islands, the same rare disease case data is scattered in different medical institutions and cannot form a large-scale sample, and therefore effective research cannot be carried out at all without a large number of case samples, which is the biggest problem in the current rare disease research. In addition, at present, most research institutions carry out research management on a certain disease to independently establish a research team, or individual researchers carry out research according to resources mastered by the researchers, and the researchers just like a disc of scattered sand, and the researches are in mutual conflict, so that case data collection and disease research can be carried out only in a small range, effective information cannot be obtained from mass data, and cooperative work and case sharing among different researchers of different research institutions or the same research institution cannot be realized. If researchers researching the same disease can form corresponding research groups by utilizing computer communication technology, each researcher in the group can contribute own resources, such as case data, research results and the like, and group members can develop discussion and plan in the group at any time, great convenience is provided for research of rare diseases, and diagnosis efficiency of the rare diseases is improved. However, no such system platform has been developed in the art.
In summary, in view of the problems in the prior art, there is a need in the art for a rare disease research group management scheme that can organize rare disease researchers into research groups with different diseases, and enable members in the group to share and work cooperatively with rare disease cases.
Disclosure of Invention
In view of the above, an object of the embodiments of the present invention is to provide a rare disease research group management method, a storage medium, and a computer program product, which can solve the problem that researchers cannot perform rare disease research in the form of group cooperative work and shared cases.
Based on the above purpose, an aspect of the embodiments of the present invention provides a rare disease research group management method, including the following steps:
the method comprises the steps that a server receives a group creating request sent by a client corresponding to a user who makes the group creating request, wherein the group creating request is a single center group creating request or a multi-center group creating request, the single center group creating request at least comprises a user account number and an affiliated research institution of the single center group creating user, a group name, a type and a research disease name of a single center group to be created, and the multi-center group creating request at least comprises the user account number and the affiliated research institution of the multi-center group creating user, the group name, the type and the research disease name of the multi-center group to be created and at least one cooperative research institution;
the server directly creates a corresponding single-center group according to the request for creating the single-center group and distributes a group identification to the single-center group when receiving the request for creating the single-center group, the server verifies the request for creating the multi-center group when receiving the request for creating the multi-center group, if the cooperative research institution in the request for creating the multi-center group is different from the affiliated research institution of the user for creating the multi-center group, the verification is passed, the server creates a corresponding multi-center group according to the request for creating the multi-center group and distributes a group identification to the multi-center group, if the cooperative research institution in the request for creating the multi-center group only contains one only cooperative research institution which is the same as the affiliated research institution of the user for creating the multi-center group, the verification is not passed, and the server sends a multi-center group review to the client corresponding to the user who makes the request for creating the group And checking results, wherein the multi-center group checking results comprise a message for informing the user of creating the multi-center group that the request for creating the multi-center group is not checked.
The method for managing the rare disease research group as described above preferably further comprises the steps of:
the server receives enrollment application information sent by a client corresponding to an enrollment user, wherein the enrollment application information comprises a group identifier of a group to which the enrollment user applies for enrollment, a user account of the enrollment user, a research institution to which the enrollment user belongs and a research disease name;
the server sends the grouping application information to a client corresponding to a user creating a group applying for joining based on the group identification in the grouping application information;
the client corresponding to the user creating the group applying for joining examines and approves whether the information of the group joining application meets preset conditions, if so, the user agrees to join the group, otherwise, the user does not agree to join the group, and then a group application examination and approval result is sent to the server; and
and the server determines whether to execute joining operation according to the approval result of the group joining application.
In the method for managing a rare disease research group, the preset conditions are preferably:
a. the research institution applying for the grouping user in the grouping application information is the same as the research institution creating the user applying for the joining of the single center group, and the research disease name of the grouping user in the grouping application information is the same as the research disease name of the joining of the single center group; or
b. The research institution applying for the user who joins in the grouping application information is the same as the research institution creating the user who applies for joining in the multi-center group or one of the collaborative research institutions of the multi-center group, and the research disease name of the user applying for joining in the grouping application information is the same as the research disease name of the multi-center group applying for joining in the grouping application information.
In the method for managing a rare disease research group, preferably, the step of determining, by the server, whether to perform a joining operation according to the approval result of the enrollment application further includes:
if the server receives the approval result of the grouping application, the server adds the user who applies for grouping into the single-center group or the multi-center group which applies for grouping, and if the approval result of the grouping application received by the server is not approved for grouping, the server forwards the approval result of the grouping application to the client corresponding to the user who applies for grouping.
The method for managing the rare disease research group as described above preferably further comprises the steps of:
the server receives group-entering invitation information sent by a client corresponding to a user sending the invitation;
the server invites the invited user to join in a single-center group or a multi-center group to be invited according to the group-entering invitation information; and
if the invited user accepts the invitation, the server adds the invited user into the single center group or the multi-center group which is added by the invitation and sends an invitation accepting message to the client corresponding to the user sending the invitation, and if the invited user refuses the invitation, the server sends an invitation refusing message to the client corresponding to the user sending the invitation.
In the method for managing a rare disease research group, preferably, the group invitation information includes the user account of the invited user, the research institution to which the invited user belongs, and the name of the research disease of the single-center group or the multi-center group to which the invitation is added,
the server inviting the invited user to join in the single center group or the multi-center group which is invited to join according to the group-entering invitation information further comprises the following steps: and the server invites the invited user to join the single-center group or the multi-center group to which the invitation is joined according to the user account of the invited user and the affiliated research institution.
The method for managing the rare disease research group as described above preferably further comprises the steps of:
the server generates a group recommendation message, wherein the group recommendation message comprises a group name, a research disease name and a type of a recommendation group screened by the server according to a research institution to which the user receiving the group recommendation message belongs and the research disease name;
the server sends the group recommendation message to a client corresponding to the user receiving the group recommendation message; and
and selecting a corresponding recommendation group from the recommendation group to apply for joining by the client corresponding to the user receiving the group recommendation message according to the selection of the user receiving the group recommendation message.
In the method for managing a rare disease study group, preferably, the request for creating a single center group further includes a sharing level of the single center group to be created, and the request for creating a multi-center group further includes a sharing level of the multi-center group to be created.
In view of the above object, another aspect of the embodiments of the present invention provides a computer-readable storage medium storing a computer program, which when executed by a processor performs the method as described above.
In view of the above object, another aspect of the embodiments of the present invention provides a computer program product comprising a computer program stored on a computer-readable storage medium, the computer program comprising instructions which, when executed by a computer, cause the computer to perform the method as described above.
Advantageous effects
The rare disease research group management method, the storage medium and the computer program product can enable researchers of different research institutions or the same research institution researching the same disease to form a corresponding research group, and each researcher in the group can realize cooperative work and case sharing, for example, each researcher in the group can contribute own resources such as case data, research results and the like, and group members can develop discussion and plan in the group at any time.
Drawings
FIG. 1 is a schematic flow chart of a rare disease study group management method according to one embodiment of the present invention;
FIG. 2 is a schematic flow chart of a rare disease study group management method of a preferred embodiment;
FIG. 3 is a schematic flow chart of a rare disease study group management method of a preferred embodiment; and
FIG. 4 is a flow chart illustrating a method for managing a rare disease study group according to a preferred embodiment.
Detailed Description
The following examples are intended to illustrate the invention but are not intended to limit the scope of the invention. Unless otherwise specified, the technical means used in the examples are conventional means well known to those skilled in the art.
Those skilled in the art will appreciate that: the "user" in the following embodiments is a researcher with rare diseases, but the same user may be in different roles in different scenarios, for example, when the user a creates a group, he is a user who creates the group, and when the user a applies for joining the group, he is a user who applies for joining the group, and a person skilled in the art should not only understand the meaning of the "user" through literal expression, but should understand the meaning according to the scenario in which the "user" is located. Thus, when a "user" is presented in one embodiment that is described in different words, it may actually be the same "user" but a different operation is performed. Vice versa, when a "user" is described with the same words in one embodiment, it may actually be a different "user," but the same operations are performed. In view of this, for a "user" appearing in the following embodiments, which is not explicitly described, one skilled in the art can determine in what role it is and whether it is the same as other "users" according to the context description. Similarly, for a "client" corresponding to a "user", a person skilled in the art should understand the meaning and the operation performed according to the scene where the "client" is located.
Based on the above purpose, the embodiment of the invention provides an embodiment of a rare disease research group management method. Fig. 1 is a flowchart illustrating the rare disease study group management method according to this embodiment. The individual steps of the rare disease study group management method are described in detail below with reference to fig. 1.
First, in step S101, the server receives a group creation request sent by a client corresponding to a user who made the group creation request. The group creating request is a single center group creating request or a multi-center group creating request, the single center group creating request at least comprises a user account number and an affiliated research institution of a user creating a single center group, a group name, a type and a research disease name of a single center group to be created, and the multi-center group creating request at least comprises a user account number and an affiliated research institution of a user creating a multi-center group, a group name, a type and a research disease name of a multi-center group to be created and at least one cooperative research institution.
Next, when receiving the request for creating a single-center group, the server creates a corresponding single-center group directly according to the request for creating a single-center group and allocates a group identifier to the single-center group (step S102). Or, the server checks the request when receiving the request for creating the multi-center group (step S103), if the collaborative research institution in the request for creating the multi-center group is different from the research institution to which the user for creating the multi-center group belongs, the checking is passed, and then step S104 is entered, the server creates a corresponding multi-center group according to the request for creating the multi-center group and allocates a group identifier to the multi-center group; if the collaborative research institution in the request for creating the multi-center group only contains the only one collaborative research institution which is the same as the research institution to which the user for creating the multi-center group belongs, the audit is not passed, and then the step S105 is entered, and the server sends a multi-center group audit result to the client corresponding to the user who provides the request for creating the multi-center group. Specifically, since at least two different research institutions should be included in one multi-center group, if the server finds, through the audit, that only one of the collaborative research institutions in the request for creating the multi-center group includes the same single institution as the research institution of the user creating the multi-center group, that is, the group to be created is a single-center group, not a multi-center group, and thus the audit is not passed. The multi-center group audit result comprises a message informing the user of the creation of the multi-center group that the request for the creation of the multi-center group is not approved.
The user accounts have uniqueness, namely the user accounts and the users are in one-to-one correspondence, and the condition that one user account corresponds to a plurality of users or a plurality of user accounts correspond to one user does not exist, so that the condition that confusion occurs when a group is established can be avoided. Similarly, the group id also has uniqueness, that is, the group id and the group are in a one-to-one correspondence relationship. The collaborative research institution is a different institution from the affiliated research institution that created the users of the multicenter group, i.e., at least two research institutions are included in one multicenter group. The research institution may be a hospital, a school, a research institute, etc. The explanations made above apply equally to the relevant matters referred to below.
FIG. 2 is a flow chart illustrating a method for managing a rare disease study group according to a preferred embodiment. On the basis of the above embodiment, the rare disease study group management method of the preferred embodiment may further include the steps of: step S201, the server receives enrollment application information sent by a client corresponding to an enrollment user, wherein the enrollment application information comprises a group identifier of a group to which the enrollment application is applied, a user account of the enrollment user, a research institution to which the enrollment user belongs, and a research disease name; step S202, the server sends the grouping application information to a client corresponding to a user creating a group applying for joining based on the group identification in the grouping application information; step S203, the client corresponding to the user who establishes the group applying for joining examines and approves whether the information of the group application meets the preset conditions, if so, the user agrees to join the group, otherwise, the user does not agree to the group, and then a group application examination and approval result is sent to the server; and step S204, the server determines whether to execute joining operation according to the approval result of the group joining application.
In a preferred embodiment, the preset conditions are: a. the research institution applying for the grouping user in the grouping application information is the same as the research institution creating the user applying for the joining of the single center group, and the research disease name of the grouping user in the grouping application information is the same as the research disease name of the joining of the single center group; the research institution applying for the grouping user in the grouping application information is the same as the research institution creating the user applying for the joining or one of the collaborative research institutions of the multi-center group, and the research disease name of the user applying for the grouping in the grouping application information is the same as the research disease name of the multi-center group applying for the joining.
In a preferred embodiment, the determining, by the server, whether to perform the joining operation according to the approval result of the grouping application further includes: if the result of the approval of the enrollment application received by the server is approval to enroll, the server adds the user applying for enrollment into the single-center group or the multi-center group applying for enrollment, for example, the server adds the user account (or the user identifier) of the user applying for enrollment into a member list of the group. And if the approval result of the grouping application received by the server is not approved to the group, the server forwards the approval result of the grouping application to the client corresponding to the user applying for grouping.
FIG. 3 is a flow chart illustrating a method for managing a rare disease study group according to a preferred embodiment. On the basis of the above embodiment, the rare disease study group management method of the preferred embodiment may further include the steps of: the server receives group invitation information sent by a client corresponding to a user sending an invitation (step S301); the server invites the invited user to join in a single center group or a multi-center group to be invited according to the group invitation information (step S302); and if the invited user accepts the invitation, the server joins the invited user in the single-center group or the multi-center group which the invitation joins and sends an acceptance invitation message to the client corresponding to the inviting user (step S303), and if the invited user refuses the invitation, the server sends a rejection invitation message to the client corresponding to the inviting user (step S304).
In a preferred embodiment, the group invitation information includes the user account of the invited user, the research institution to which the invited user belongs, and the name of the research disease of the single-center group or the multi-center group to which the invitation is added. The server inviting the invited user to join in the single center group or the multi-center group which is invited to join according to the group-entering invitation information further comprises the following steps: and the server invites the invited user to join the single-center group or the multi-center group to which the invitation is joined according to the user account of the invited user and the affiliated research institution.
It is emphasized that the invited user is invited to satisfy one of two conditions: a. the research institution of the invited user is the same as the research institution of the user creating the single-center group which the invitation joins, and the research disease name of the invited user is the same as the research disease name of the single-center group which the invitation joins; the research institution of the invited user is the same as the research institution of the user who creates the multi-center group which the invitation joins or one of the collaborative research institutions of the multi-center group which the invitation joins, and the research disease name of the invited user is the same as the research disease name of the multi-center group which the invitation joins.
FIG. 4 is a flow chart illustrating a method for managing a rare disease study group according to a preferred embodiment. On the basis of the above embodiment, the rare disease study group management method of the preferred embodiment may further include the steps of: step S401, the server generates a group recommendation message, wherein the group recommendation message comprises the group name, the research disease name and the type of a recommendation group screened by the server according to the research institution to which the user receiving the group recommendation message belongs and the research disease name; step S402, the server sends the group recommendation message to a client corresponding to the user receiving the group recommendation message; and step S403, selecting a corresponding recommended group from the recommended group by the client corresponding to the user receiving the group recommendation message according to the selection of the user receiving the group recommendation message to apply for joining. Because the recommendation groups are screened by the server according to the research institutions and the research disease names of the users receiving the group recommendation messages, the users are not required to carry out the examination and approval operation similar to the above operation when applying for joining the recommendation groups.
It is emphasized that the recommendation group can be recommended only if it satisfies one of the following two conditions: a. the research institution of the user who creates the recommended single-center group is the same as the research institution of the user who receives the group recommendation message, and the research disease name of the user who receives the group recommendation message is the same as the research disease name of the recommended single-center group; the research institution of the user receiving the group recommendation message is the same as the research institution of the user creating the recommended multicenter group or one of the collaborative research institutions of the recommended multicenter group, and the research disease name of the user receiving the group recommendation message is the same as the research disease name of the recommended multicenter group.
In a preferred embodiment, the request for creating a single hub group further includes a sharing level of the single hub group to be created, and the request for creating a multi-hub group further includes a sharing level of the multi-hub group to be created. The sharing level can be divided into: first-level, all case data is visible to all researchers in the cohort; the second level, all case data is only visible to the researcher who owns the group leader authority, and the data is not shared among the other group members.
In view of the above object, the embodiment of the present invention further provides an embodiment of a computer-readable storage medium. The computer-readable storage medium stores computer-executable instructions that may perform the method of any of the method embodiments described above. Embodiments of the computer-readable storage medium may achieve the same or similar effects as any of the preceding method embodiments to which it corresponds.
In view of the above object, the embodiment of the present invention further provides an embodiment of a computer program product. The computer program product comprises a computer program stored on a computer-readable storage medium, the computer program comprising instructions which, when executed by a computer, cause the computer to perform the method of any of the method embodiments described above. Embodiments of the computer program product may achieve the same or similar effects as any of the preceding method embodiments to which it corresponds.
Since the computer-readable storage medium and the computer program product in the foregoing embodiments correspond to the methods described in the foregoing method embodiments, relevant descriptions may be found in the foregoing method embodiments where detailed descriptions are omitted in the foregoing embodiments, and further description is omitted here for brevity of the description.
In addition, the apparatuses, devices and the like disclosed in the embodiments of the present invention may be various electronic terminal devices, such as a mobile phone, a Personal Digital Assistant (PDA), a tablet computer (PAD), a smart television and the like, or may be large terminal devices, such as a server and the like, and therefore the scope of protection disclosed in the embodiments of the present invention should not be limited to a specific type of system or device.
Finally, it should be noted that, as will be understood by those skilled in the art, all or part of the processes of the methods of the above embodiments may be implemented by a computer program, which may be stored in a computer-readable storage medium, and when executed, may include the processes of the embodiments of the methods described above. The storage medium may be a magnetic disk, an optical disk, a Read-Only Memory (ROM), a Random Access Memory (RAM), or the like. Embodiments of the computer program may achieve the same or similar effects as any of the preceding method embodiments to which it corresponds.
Further, it should be appreciated that the computer-readable storage media (e.g., memory) described herein can be either volatile memory or nonvolatile memory, or can include both volatile and nonvolatile memory. By way of example, and not limitation, nonvolatile memory can include Read Only Memory (ROM), Programmable ROM (PROM), Electrically Programmable ROM (EPROM), Electrically Erasable Programmable ROM (EEPROM), or flash memory. Volatile memory can include Random Access Memory (RAM), which can act as external cache memory. By way of example and not limitation, RAM is available in a variety of forms such as synchronous RAM (DRAM), Dynamic RAM (DRAM), Synchronous DRAM (SDRAM), double data rate SDRAM (DDR SDRAM), Enhanced SDRAM (ESDRAM), Synchronous Link DRAM (SLDRAM), and Direct Rambus RAM (DRRAM). The storage devices of the disclosed aspects are intended to comprise, without being limited to, these and other suitable types of memory.
Although the invention has been described in detail hereinabove with respect to a general description and specific embodiments thereof, it will be apparent to those skilled in the art that modifications or improvements may be made thereto based on the invention. Accordingly, such modifications and improvements are intended to be within the scope of the invention as claimed.

Claims (10)

1. A rare disease study group management method, comprising the steps of:
the method comprises the steps that a server receives a group creating request sent by a client corresponding to a user who makes the group creating request, wherein the group creating request is a single center group creating request or a multi-center group creating request, the single center group creating request at least comprises a user account number and an affiliated research institution of the single center group creating user, a group name, a type and a research disease name of a single center group to be created, and the multi-center group creating request at least comprises the user account number and the affiliated research institution of the multi-center group creating user, the group name, the type and the research disease name of the multi-center group to be created and at least one cooperative research institution;
the server directly creates a corresponding single-center group according to the request for creating the single-center group and distributes a group identification to the single-center group when receiving the request for creating the single-center group, the server verifies the request for creating the multi-center group when receiving the request for creating the multi-center group, if the cooperative research institution in the request for creating the multi-center group is different from the affiliated research institution of the user for creating the multi-center group, the verification is passed, the server creates a corresponding multi-center group according to the request for creating the multi-center group and distributes a group identification to the multi-center group, if the cooperative research institution in the request for creating the multi-center group only contains one only cooperative research institution which is the same as the affiliated research institution of the user for creating the multi-center group, the verification is not passed, and the server sends a multi-center group review to the client corresponding to the user who makes the request for creating the group And checking results, wherein the multi-center group checking results comprise a message for informing the user of creating the multi-center group that the request for creating the multi-center group is not checked.
2. The rare disease study group management method of claim 1, further comprising the steps of:
the server receives enrollment application information sent by a client corresponding to an enrollment user, wherein the enrollment application information comprises a group identifier of a group to which the enrollment user applies for enrollment, a user account of the enrollment user, a research institution to which the enrollment user belongs and a research disease name;
the server sends the grouping application information to a client corresponding to a user creating a group applying for joining based on the group identification in the grouping application information;
the client corresponding to the user creating the group applying for joining examines and approves whether the information of the group joining application meets preset conditions, if so, the user agrees to join the group, otherwise, the user does not agree to join the group, and then a group application examination and approval result is sent to the server; and
and the server determines whether to execute joining operation according to the approval result of the group joining application.
3. The rare disease study group management method of claim 2, wherein the preset conditions are:
a. the research institution applying for the grouping user in the grouping application information is the same as the research institution creating the user applying for the joining of the single center group, and the research disease name of the grouping user in the grouping application information is the same as the research disease name of the joining of the single center group; or
b. The research institution applying for the user who joins in the grouping application information is the same as the research institution creating the user who applies for joining in the multi-center group or one of the collaborative research institutions of the multi-center group, and the research disease name of the user applying for joining in the grouping application information is the same as the research disease name of the multi-center group applying for joining in the grouping application information.
4. The rare disease study group management method of claim 3, wherein the server determining whether to perform a join operation based on the approval of the enrollment application further comprises:
if the server receives the approval result of the grouping application, the server adds the user who applies for grouping into the single-center group or the multi-center group which applies for grouping, and if the approval result of the grouping application received by the server is not approved for grouping, the server forwards the approval result of the grouping application to the client corresponding to the user who applies for grouping.
5. The rare disease study group management method of claim 1, further comprising the steps of:
the server receives group-entering invitation information sent by a client corresponding to a user sending the invitation;
the server invites the invited user to join in a single-center group or a multi-center group to be invited according to the group-entering invitation information; and
if the invited user accepts the invitation, the server adds the invited user into the single center group or the multi-center group which is added by the invitation and sends an invitation accepting message to the client corresponding to the user sending the invitation, and if the invited user refuses the invitation, the server sends an invitation refusing message to the client corresponding to the user sending the invitation.
6. The rare disease study group management method of claim 5, wherein the group invitation information includes the user account of the invited user and the research institution to which the invited user belongs and the name of the study disease of the single-center group or the multi-center group to which the invitation is added,
the server inviting the invited user to join in the single center group or the multi-center group which is invited to join according to the group-entering invitation information further comprises the following steps: and the server invites the invited user to join the single-center group or the multi-center group to which the invitation is joined according to the user account of the invited user and the affiliated research institution.
7. The rare disease study group management method of claim 1, further comprising the steps of:
the server generates a group recommendation message, wherein the group recommendation message comprises a group name, a research disease name and a type of a recommendation group screened by the server according to a research institution to which the user receiving the group recommendation message belongs and the research disease name;
the server sends the group recommendation message to a client corresponding to the user receiving the group recommendation message; and
and selecting a corresponding recommendation group from the recommendation group to apply for joining by the client corresponding to the user receiving the group recommendation message according to the selection of the user receiving the group recommendation message.
8. The method of claim 1, wherein the request to create a single-centric group further comprises a sharing level of the single-centric group to be created, and the request to create a multi-centric group further comprises a sharing level of the multi-centric group to be created.
9. A computer-readable storage medium, in which a computer program is stored which, when being executed by a processor, carries out the method according to any one of claims 1-8.
10. A computer program product, comprising a computer program stored on a computer-readable storage medium, the computer program comprising instructions which, when executed by a computer, cause the computer to perform the method of any of claims 1-8.
CN201911217741.4A 2019-12-03 2019-12-03 Rare disease study group management method, storage medium, and computer program product Pending CN111009329A (en)

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